Cystic Fibrosis Forum (EXP)

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Recent content by 3gr8kids

  1. 3

    Tune up

    so here is the update! we went to Syracuse Friday..... and they think Kaley has an auto immune disease...she seems to be sick quite a bit lately but they say it is not cf. Dr Soultan says that her sweat isnt high enough for her to really be affected by cf...hmmm i think the more i go to appts...
  2. 3

    Tune up

    so here is the update! we went to Syracuse Friday..... and they think Kaley has an auto immune disease...she seems to be sick quite a bit lately but they say it is not cf. Dr Soultan says that her sweat isnt high enough for her to really be affected by cf...hmmm i think the more i go to appts...
  3. 3

    Tune up

    so here is the update! we went to Syracuse Friday..... and they think Kaley has an auto immune disease...she seems to be sick quite a bit lately but they say it is not cf. Dr Soultan says that her sweat isnt high enough for her to really be affected by cf...hmmm i think the more i go to appts...
  4. 3

    Tune up

    so here is the update! we went to Syracuse Friday..... and they think Kaley has an auto immune disease...she seems to be sick quite a bit lately but they say it is not cf. Dr Soultan says that her sweat isnt high enough for her to really be affected by cf...hmmm i think the more i go to appts...
  5. 3

    Tune up

    so here is the update! we went to Syracuse Friday..... and they think Kaley has an auto immune disease...she seems to be sick quite a bit lately but they say it is not cf. Dr Soultan says that her sweat isnt high enough for her to really be affected by cf...hmmm i think the more i go to appts...
  6. 3

    yet another neb cleaning question

    we use the germ guardian too!!! its a life saver and we put a lot in it...as long as the lid fits tight then everything is sanatized!!!! we bought ours on amazon and it was 35 inc shipping! good luck!
  7. 3

    yet another neb cleaning question

    we use the germ guardian too!!! its a life saver and we put a lot in it...as long as the lid fits tight then everything is sanatized!!!! we bought ours on amazon and it was 35 inc shipping! good luck!
  8. 3

    yet another neb cleaning question

    we use the germ guardian too!!! its a life saver and we put a lot in it...as long as the lid fits tight then everything is sanatized!!!! we bought ours on amazon and it was 35 inc shipping! good luck!
  9. 3

    yet another neb cleaning question

    we use the germ guardian too!!! its a life saver and we put a lot in it...as long as the lid fits tight then everything is sanatized!!!! we bought ours on amazon and it was 35 inc shipping! good luck!
  10. 3

    yet another neb cleaning question

    we use the germ guardian too!!! its a life saver and we put a lot in it...as long as the lid fits tight then everything is sanatized!!!! we bought ours on amazon and it was 35 inc shipping! good luck!
  11. 3

    Tune up

    neither one of my cfers have ever cultured anything...it just seems like they are always sick...and I dont know if its CF or well CF...hmmmm....My kids both have very high pulm func numbers....but they have a ton of mucus...it is just so hard to tell what they need....and i hate the fact that...
  12. 3

    Tune up

    neither one of my cfers have ever cultured anything...it just seems like they are always sick...and I dont know if its CF or well CF...hmmmm....My kids both have very high pulm func numbers....but they have a ton of mucus...it is just so hard to tell what they need....and i hate the fact that...
  13. 3

    Tune up

    neither one of my cfers have ever cultured anything...it just seems like they are always sick...and I dont know if its CF or well CF...hmmmm....My kids both have very high pulm func numbers....but they have a ton of mucus...it is just so hard to tell what they need....and i hate the fact that...
  14. 3

    Tune up

    neither one of my cfers have ever cultured anything...it just seems like they are always sick...and I dont know if its CF or well CF...hmmmm....My kids both have very high pulm func numbers....but they have a ton of mucus...it is just so hard to tell what they need....and i hate the fact that...
  15. 3

    Tune up

    neither one of my cfers have ever cultured anything...it just seems like they are always sick...and I dont know if its CF or well CF...hmmmm....My kids both have very high pulm func numbers....but they have a ton of mucus...it is just so hard to tell what they need....and i hate the fact that...
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