Cystic Fibrosis Forum (EXP)

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Recent content by aesdesign2

  1. A

    What the Future Holds

    I did not mention that my wife and I are both F508del mutation gene carriers. I do not know if that makes a difference or not.
  2. A

    What the Future Holds

    We have a 5 month old daughter that was diagnosed with the F508del mutation 3 weeks after she was born. Luckily she was diagnosed before she ever got sick and we immediately got her hooked with Texas Children's in Houston. The doctor is telling us that, on a scale of 10, she is a 9.5. We just...
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