Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Recent content by AidansMom

  1. A

    Newborn w/ CF, enzyme question!

    A HUGE Thank you folks! Your quick responses are VERY MUCH appreciated! I gather that applesauce will work just fine given she has no reaction to it. Mommafirst, I hadn't thought of placing the beads on my nipples! Great idea! I'll try it for sure <img...
  2. A

    Newborn w/ CF, enzyme question!

    A HUGE Thank you folks! Your quick responses are VERY MUCH appreciated! I gather that applesauce will work just fine given she has no reaction to it. Mommafirst, I hadn't thought of placing the beads on my nipples! Great idea! I'll try it for sure <img...
  3. A

    Newborn w/ CF, enzyme question!

    A HUGE Thank you folks! Your quick responses are VERY MUCH appreciated! I gather that applesauce will work just fine given she has no reaction to it. Mommafirst, I hadn't thought of placing the beads on my nipples! Great idea! I'll try it for sure <img...
  4. A

    Newborn w/ CF, enzyme question!

    Hello All, My newborn baby girl has just been diagnosed with CF. I now have two babies with CF. My son was dx'd at 9 months old and began Creon 5 immediately. We were told to give him applesauce with his enzymes. Well, I've since moved and am seeing a new CF team for my son and just spoke...
  5. A

    Newborn w/ CF, enzyme question!

    Hello All, My newborn baby girl has just been diagnosed with CF. I now have two babies with CF. My son was dx'd at 9 months old and began Creon 5 immediately. We were told to give him applesauce with his enzymes. Well, I've since moved and am seeing a new CF team for my son and just spoke...
  6. A

    Newborn w/ CF, enzyme question!

    Hello All, My newborn baby girl has just been diagnosed with CF. I now have two babies with CF. My son was dx'd at 9 months old and began Creon 5 immediately. We were told to give him applesauce with his enzymes. Well, I've since moved and am seeing a new CF team for my son and just spoke...
  7. A

    We are 6 months

    Oh my goodness! I'm in love <img src="i/expressions/face-icon-small-smile.gif" border="0"> I'll have a smile on my face this entire day, what precious little people you have! Okay, time to call and schedule more baby pics for my Aidan! My husband is a sailor (he's currently on deployment) and...
  8. A

    We are 6 months

    Oh my goodness! I'm in love <img src="i/expressions/face-icon-small-smile.gif" border="0"> I'll have a smile on my face this entire day, what precious little people you have! Okay, time to call and schedule more baby pics for my Aidan! My husband is a sailor (he's currently on deployment) and...
  9. A

    We are 6 months

    Oh my goodness! I'm in love <img src="i/expressions/face-icon-small-smile.gif" border="0"> I'll have a smile on my face this entire day, what precious little people you have! Okay, time to call and schedule more baby pics for my Aidan! My husband is a sailor (he's currently on deployment) and...
  10. A

    Why are doctors so resistant to test for CF?

    Hi Renee, That is absolute MADNESS! Reading your post makes me so upset. My baby boy had to endure nearly the same treatment (or mistreatment i should say) while all along I was more and more concerned that he could have CF. I kept telling the Dr's that I was a carrier and he had so many CF...
  11. A

    Why are doctors so resistant to test for CF?

    Hi Renee, That is absolute MADNESS! Reading your post makes me so upset. My baby boy had to endure nearly the same treatment (or mistreatment i should say) while all along I was more and more concerned that he could have CF. I kept telling the Dr's that I was a carrier and he had so many CF...
  12. A

    Why are doctors so resistant to test for CF?

    Hi Renee, That is absolute MADNESS! Reading your post makes me so upset. My baby boy had to endure nearly the same treatment (or mistreatment i should say) while all along I was more and more concerned that he could have CF. I kept telling the Dr's that I was a carrier and he had so many CF...
  13. A

    Aidan's CF Check-UP

    Hi Megan, I've asked the same questions to the Doc's at the CF Clinic In Seattle (I think they're great!) regarding cord blood, and they pretty much told me that it would be useless and gave me some explanation about how studies using gene therapy have not been promising so far. I was so...
  14. A

    Aidan's CF Check-UP

    Hi Megan, I've asked the same questions to the Doc's at the CF Clinic In Seattle (I think they're great!) regarding cord blood, and they pretty much told me that it would be useless and gave me some explanation about how studies using gene therapy have not been promising so far. I was so...
  15. A

    Aidan's CF Check-UP

    Hi Megan, I've asked the same questions to the Doc's at the CF Clinic In Seattle (I think they're great!) regarding cord blood, and they pretty much told me that it would be useless and gave me some explanation about how studies using gene therapy have not been promising so far. I was so...
Top