Recent content by Alexander

Its stories like these that make me tear up out of joy. Please, keep the reports from the patients coming. I am more than curious to find out more about people's experiences. Good times are coming for us!

Hi everyone, I'll make it short: I've been coughin blood regularly for about 3 weeks now. It's not much, more like a 50/50 mix or even less. What concerns me is that its just been so regularly. This year I had like a 3 month break from coughing blood and now it started again. In the past few...

Hey Guys, I would like to know your opinion about drinking alcoholic baverages. Just to see is the symptoms are the same. Because, everytime I drink a few Beer, I can just feel how my lungs dry up. Weird thing is that every single time I drink, I start coughing up dark stuff. Everytime! And the...

Hey Guys, I would like to know your opinion about drinking alcoholic baverages. Just to see is the symptoms are the same. Because, everytime I drink a few Beer, I can just feel how my lungs dry up. Weird thing is that every single time I drink, I start coughing up dark stuff. Everytime! And the...

Hey Guys, I would like to know your opinion about drinking alcoholic baverages. Just to see is the symptoms are the same. Because, everytime I drink a few Beer, I can just feel how my lungs dry up. Weird thing is that every single time I drink, I start coughing up dark stuff. Everytime! And the...

Hey Guys, I would like to know your opinion about drinking alcoholic baverages. Just to see is the symptoms are the same. Because, everytime I drink a few Beer, I can just feel how my lungs dry up. Weird thing is that every single time I drink, I start coughing up dark stuff. Everytime! And the...

Hey Guys, <br /> <br />I would like to know your opinion about drinking alcoholic baverages. Just to see is the symptoms are the same. <br />Because, everytime I drink a few Beer, I can just feel how my lungs dry up. Weird thing is that every single time I drink, I start coughing up dark stuff...

Ok, this will be interesting. By the way, I dont have much lung damage. It is still a mystery to my docs why my FEV1 is so low. Cause my CT scans look quite good. Only thing is that I have some minor damages on the top of my lungs. Otherwise all is ok. But this isnt why i opened this post^^...

Ok, this will be interesting. By the way, I dont have much lung damage. It is still a mystery to my docs why my FEV1 is so low. Cause my CT scans look quite good. Only thing is that I have some minor damages on the top of my lungs. Otherwise all is ok. But this isnt why i opened this post^^...

Ok, this will be interesting. By the way, I dont have much lung damage. It is still a mystery to my docs why my FEV1 is so low. Cause my CT scans look quite good. Only thing is that I have some minor damages on the top of my lungs. Otherwise all is ok. But this isnt why i opened this post^^...

Ok, this will be interesting. By the way, I dont have much lung damage. It is still a mystery to my docs why my FEV1 is so low. Cause my CT scans look quite good. Only thing is that I have some minor damages on the top of my lungs. Otherwise all is ok. But this isnt why i opened this post^^...

Ok, this will be interesting. By the way, I dont have much lung damage. It is still a mystery to my docs why my FEV1 is so low. Cause my CT scans look quite good. Only thing is that I have some minor damages on the top of my lungs. Otherwise all is ok. But this isnt why i opened this post^^ <br...

Hey Guys, just having some thoughts about the VX-809 Drug for people, who have the Delta F508 mutation of CF. As you may have read on my other post, My FEV1 is quite low, around 45%. So I was wondering, what will VX-809 do for me and for others? Will it totally compensate the CF Gene defect...

Hey Guys, just having some thoughts about the VX-809 Drug for people, who have the Delta F508 mutation of CF. As you may have read on my other post, My FEV1 is quite low, around 45%. So I was wondering, what will VX-809 do for me and for others? Will it totally compensate the CF Gene defect...

Hey Guys, just having some thoughts about the VX-809 Drug for people, who have the Delta F508 mutation of CF. As you may have read on my other post, My FEV1 is quite low, around 45%. So I was wondering, what will VX-809 do for me and for others? Will it totally compensate the CF Gene defect...