Cystic Fibrosis Forum (EXP)

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Recent content by alkthatcher

  1. A

    Atypical Cystic Fibrosis

    Yeah, seeing those statistics is what made me think we should check CHOP out, and just because in this area it's considered the best children's hospital around. They picked up a CF marker in Bobby's newborn screen, but we weren't terribly worried about it, partially because they said it was...
  2. A

    Atypical Cystic Fibrosis

    Yeah, seeing those statistics is what made me think we should check CHOP out, and just because in this area it's considered the best children's hospital around. They picked up a CF marker in Bobby's newborn screen, but we weren't terribly worried about it, partially because they said it was...
  3. A

    Atypical Cystic Fibrosis

    Yeah, seeing those statistics is what made me think we should check CHOP out, and just because in this area it's considered the best children's hospital around. <br /> <br />They picked up a CF marker in Bobby's newborn screen, but we weren't terribly worried about it, partially because they...
  4. A

    Choosing a Center - CHOP vs duPont

    I'd really like some advice on deciding to keep my son at A.I. duPont Hospital for Children or transfer his care to Children's Hospital of Philadelphia. It's very difficult to find rankings or "best of CF Centers" lists on the Web. Our son has been a patient at both a CHOP affiliate NICU and...
  5. A

    Choosing a Center - CHOP vs duPont

    I'd really like some advice on deciding to keep my son at A.I. duPont Hospital for Children or transfer his care to Children's Hospital of Philadelphia. It's very difficult to find rankings or "best of CF Centers" lists on the Web. Our son has been a patient at both a CHOP affiliate NICU and...
  6. A

    Choosing a Center - CHOP vs duPont

    I'd really like some advice on deciding to keep my son at A.I. duPont Hospital for Children or transfer his care to Children's Hospital of Philadelphia. It's very difficult to find rankings or "best of CF Centers" lists on the Web. <br /> <br />Our son has been a patient at both a CHOP affiliate...
  7. A

    Atypical Cystic Fibrosis

    Actually, the state screening found my son's CF, but it was consistent with some of the conditions he was dealing with as a premature infant born at 26 weeks, 1 lb 4 oz. He is now up to 9 pounds and is five months old. Right now all we're doing is nebulizer treatments, pulmicort and pulmizyme...
  8. A

    Atypical Cystic Fibrosis

    Actually, the state screening found my son's CF, but it was consistent with some of the conditions he was dealing with as a premature infant born at 26 weeks, 1 lb 4 oz. He is now up to 9 pounds and is five months old. Right now all we're doing is nebulizer treatments, pulmicort and pulmizyme...
  9. A

    Atypical Cystic Fibrosis

    Actually, the state screening found my son's CF, but it was consistent with some of the conditions he was dealing with as a premature infant born at 26 weeks, 1 lb 4 oz. He is now up to 9 pounds and is five months old. Right now all we're doing is nebulizer treatments, pulmicort and pulmizyme...
  10. A

    Atypical Cystic Fibrosis

    My son was recently diagnosed with cystic fibrosis and this was one of the first search results for the term on this site. I was unaware of any contention over the diagnosis, our doctors seemed to act like it was a perfectly normal diagnosis. We don't have the full results of my husbands' and my...
  11. A

    Atypical Cystic Fibrosis

    My son was recently diagnosed with cystic fibrosis and this was one of the first search results for the term on this site. I was unaware of any contention over the diagnosis, our doctors seemed to act like it was a perfectly normal diagnosis. We don't have the full results of my husbands' and my...
  12. A

    Atypical Cystic Fibrosis

    My son was recently diagnosed with cystic fibrosis and this was one of the first search results for the term on this site. I was unaware of any contention over the diagnosis, our doctors seemed to act like it was a perfectly normal diagnosis. We don't have the full results of my husbands' and my...
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