Recent content by Alync91

You may think about taking out some special insurance plans pre-birth for your daughter. Also, my boyfriend with DDF508 (22 years) comes from a military family which has been very fortunate as he qualified for Tricare for Life---since he has a rare disease. This means he will always have...

Please see this link in adult forum (seems like it belongs in airway clearance too so here is link): http://forums.cysticfibrosis.com/messageview.cfm?catid=5&threadid=620794&enterthread=y&STARTPAGE=1#last

A new drug application for bronchitol (dry-powder mannitol) was submitted to the FDA this summer (May) and Pharmaxisis projecting approval by March 2013 (http://202.66.146.82/listco/au/pharmaxis/interim/2012/int4qrep.pdf). With this being the case I'm wondering if there are or will be soon means...

There is supposed to be a new vest without a compressor with projected availability in late october--- see other thread: http://forums.cysticfibrosis.com/messageview.cfm?catid=5&threadid=619316&enterthread=y & this thread too...

Found this in another group thought I'd share: If Kalydeco is proven effective in treating COPD in smokers, the price will drop for everyone! <a href="http://www.newswise.com/articles/cystic-fibrosis-drug-may-be-useful-for-treating-copd-in-smokers" rel="nofollow nofollow"...

here's a link to the another thread discussing this http://forums.cysticfibrosis.com/messageview.cfm?catid=3825&threadid=619010&enterthread=y

You can search for trials now recruiting in your state through the cff website. here's the link: http://www.cff.org/research/ClinicalResearch/Find/ Click on advanced search to select a specific state

There's now a new wearable airway clearance device from the G5 (percussor) people called the<a title="G5 FREEDOM" href="http://www.fisalesllc.com/g5_freedom" target="_blank">G5 FREEDOM</a>. Wondering if anyone is using this and if so how it compares to older models in efficacy for airway...

Can every one please vote for Jillian Mc Nulty ! Running for CF, and a personal challenge of a lifetime. Just a few hours left.<a href="http://spartan.spar.ie/s/laDWiq1FihUonbXS3RFpd9oYMmlz9bVA" rel="nofollow nofollow"...

Can every one please vote for Jillian Mc Nulty ! Running for CF, and a personal challenge of a lifetime. Just a few hours left.<a href="http://spartan.spar.ie/s/laDWiq1FihUonbXS3RFpd9oYMmlz9bVA" rel="nofollow nofollow"...

Can every one please vote for Jillian Mc Nulty ! Running for CF, and a personal challenge of a lifetime. Just a few hours left.<a href="http://spartan.spar.ie/s/laDWiq1FihUonbXS3RFpd9oYMmlz9bVA" rel="nofollow nofollow"...

Can every one please vote for Jillian Mc Nulty ! Running for CF, and a personal challenge of a lifetime. Just a few hours left.<a href="http://spartan.spar.ie/s/laDWiq1FihUonbXS3RFpd9oYMmlz9bVA" rel="nofollow nofollow"...

Can every one please vote for Jillian Mc Nulty ! Running for CF, and a personal challenge of a lifetime. Just a few hours left.<a href="http://spartan.spar.ie/s/laDWiq1FihUonbXS3RFpd9oYMmlz9bVA" rel="nofollow nofollow"...

Can every one please vote for Jillian Mc Nulty ! Running for CF, and a personal challenge of a lifetime. Just a few hours left.<a href="http://spartan.spar.ie/s/laDWiq1FihUonbXS3RFpd9oYMmlz9bVA" rel="nofollow nofollow"...

2nd place now!