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I am a momma of a 9 yr. old w/CF (diagnosed at 2) who has had very good health to date. Our Drs in St. Louis had her on enzymes for 6 yrs before they figured out she is sufficient.....and this was due to me pushing and researching because she was constipated! Couldn't understand why and they...
Thank you all so much for your replies. My 8 yr. old, Jen, was diagnosed at 2 yrs. old....however it was not due to any health issues. We had been referred to a genetics counselor after a few miscarriages to give us "peace of mind" in trying for our 3rd child. The counselor did blood tests...
I am searching for anyone with the same mutation as my daughter. I have found a couple children younger than her, however, she is 8 yrs old and would love to find somebody her age or older. I do understand that there are many different variables, but wondering if we have anything in common. I...
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