Recent content by arcjoshua

Our youngest was born last December and got RSV at three weeks old. It was going around at daycare and his older brother got it. We tried like crazy to keep them apart, wash hands, etc...but toddlers are fascinated with babies and despite our best efforts they couldn't help but share. We didn't...

My boys have the delta F508 and a rare missense mutation (the name of which I still haven't memorized). From what we are told, this combo typically results in milder symptoms, but we don't really know what and when. I also know the husband of a friend of mine recently found out he has CF and he...

Hi Dowling, I've seen your other posts, and I know you are scared and want answers yesterday. My wife and I were in your shoes two plus years ago when our son was born and had a positive indicator for CF on the newborn screen. Our story went like this. We had one mutation detected on the...

So glad to hear things are improving! We will continue to pray for healing and comfort for Lezly and family!

Our CF center holds an info session for new CF families, and one parent who spoke to us had this issue one year with their daughter. They asked the school to arrange a meeting for the parents of both kids, and they worked out a plan for using different bathrooms and other contact avoidance that...

I know one way to test for pancreatic sufficiency is the fecal elastase test, which is a lab test done using a stool sample. I don't know exactly how it works, but I believe it checks the levels of enzyme or enzyme biproduct in the stool sample, and low values can indicate poor digestion (which...

Sorry this turned into a LONG reply... You found a great resource by coming here with your questions! The genetics part was a bit new to my wife and I, so we were a little unclear how it works at first. Aboveallislove makes an important point...a CF diagnosis happens when (1) each parent has...

Thanks for posting this question and for your responses so far! I'm not in your shoes, but my children will be. I'm the father of 2 young boys and we just recently confirmed the little guy has CF just like his big brother. When my oldest was diagnosed nearly 2 years ago, I thought a lot about...

I have also ordered from www.justnebulizers.com...they have a combo with a sprint lc plus neb cup and bubbles mask that makes it slightly cheaper, and the cup with regular mouthpiece and mask come packaged separately so you could have the masks for now and have extra cups for later. They do free...

I have also ordered from www.justnebulizers.com...they have a combo with a sprint lc plus neb cup and bubbles mask that makes it slightly cheaper, and the cup with regular mouthpiece and mask come packaged separately so you could have the masks for now and have extra cups for later. They do free...

Hi Bill, Thanks for the quick reply! He does see the CF specialists at one of the clinics in Boston, but I'm looking for a good local Pedi North of Boston for him to see for all the non-CF stuff (well visits, vaccines, etc). Thanks!

Hi Bill, Thanks for the quick reply! He does see the CF specialists at one of the clinics in Boston, but I'm looking for a good local Pedi North of Boston for him to see for all the non-CF stuff (well visits, vaccines, etc). Thanks!

Hi Bill, <br />Thanks for the quick reply! He does see the CF specialists at one of the clinics in Boston, but I'm looking for a good local Pedi North of Boston for him to see for all the non-CF stuff (well visits, vaccines, etc). <br /> <br />Thanks!

<P>Hi all, I've been reading for about a year now but this is my first post. My son is nearly 1.5 years old, and was diagnosed with CF through the newborn screen. I want to thank all of you for sharing your questions, stories, and words of encouragement to each other so openly here. I've learned...

<P>Hi all, I've been reading for about a year now but this is my first post. My son is nearly 1.5 years old, and was diagnosed with CF through the newborn screen. I want to thank all of you for sharing your questions, stories, and words of encouragementto each other so openly here. I've learned...