Cystic Fibrosis Forum (EXP)

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Recent content by artiste

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    Anyone diagnosed after 30

    I was diagnosed at 58. Always had pneumonia/bronchitis every winter. Always run down and sick as a child. Couldn't hold my breath underwater--camp counselors were annoyed I couldn't hold my breath long enough to dive comfortably. But, I played hockey and lacrosse on school--great times...
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    How do I fix bloating and looking like I'm a pregnant guy?

    Gluten free...was the answer for me and my son...belly was gone! But...having said that, you look great! Karen
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    CF Gas...WHY?

    Hi,I had the same problem until I went gluten free. Now my son and I are doing great. If you decide to go gluten free--really, try it for a week--there are symptoms that happen while your body is withdrawing from wheat. There may be ringing in your ears--that was mine--but it was worth it. I...
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    Anti-Depressants

    Hi Maverick, I'm on effexor (75 mg) and have been for a year. I wasn't depressed, but panicky over the smallest situation. I think that with all the meds we take in a day--no one can really say what this does to all the parts of our body. My parents were very against my taking anything--yep...
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    Whooping Cough/Pertussis Outbreak

    I work in a public school which has a large population of immigrants from Africa, Middle East, Asia, etc. I will be talking to my health provider for this issue!! And yes, these kids go back and forth from America to their native countries to visit all the time. If ever I don't feel well, I...
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    CF and Work

    At first I was just diagnosed with pancreatic insufficiency. I was hired as a long term sub--I was trying to get back into teaching as my husband had left and I needed to work. (I had stopped teaching because I was so ill.) I didn't tell anyone at first, just to judge the atmosphere. I admit...
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    Need perspective

    Grace4you, Another thing to consider...I have mild CF, not diagnosed early. My son was diagnosed before me, at the age of 2. His is mild also, and we get along in our lives just fine. Another son had cancer, Hodgkins, as a teenager. No cancer in the family--where did this come from??? The...
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    Anyone gluten intolerant as well as CF?

    Thanks so very much for all of your input!!! Even after just 10 days on the new diet, I feel so much better--worth it for sure! I am passing on this info to my sons. Thanks! Karen CF diagnosed at 57, now 58, mother of 4 boys, getting healthier every day!
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    Anyone gluten intolerant as well as CF?

    Hi all, I have "mild" cf--pancreatic insufficiency and broncheastasis (my spell checker doesn't work--hope you know what I mean!) I have a son who had hodgkins. My other sons have stomach/intestinal issues, as do my brothers and their families. One of my sons started doing the gluten free diet...
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    CF and Hair Loss in Women??

    Thanks, Susan, for your kind words. It always surprises me when someone thinks I've had it hard--we are a laughing household, always joking around. My life is pretty wonderful--I teach art in an elementary school and the kids are so excited to see me! Oil painting is my joy--yes, I only do it...
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    CF and Hair Loss in Women??

    Thanks, Susan, for your kind words. It always surprises me when someone thinks I've had it hard--we are a laughing household, always joking around. My life is pretty wonderful--I teach art in an elementary school and the kids are so excited to see me! Oil painting is my joy--yes, I only do it...
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    CF and Hair Loss in Women??

    Susan, I totally agree--something to do with CF causes hair loss. I was diagnosed last year, at age 57. I have been pancreatic insufficient for 12 years, using enzymes. I often had bronchitis/pneumonia that wouldn't stop, so a lung xray showed damage, and finally I had a diagnosis. However...
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    CF and Hair Loss in Women??

    Susan, I totally agree--something to do with CF causes hair loss. I was diagnosed last year, at age 57. I have been pancreatic insufficient for 12 years, using enzymes. I often had bronchitis/pneumonia that wouldn't stop, so a lung xray showed damage, and finally I had a diagnosis. However...
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    Stress Test

    I had a stress test a few years before being diagnosed. (I had been shoveling snow and thought I was having a heart attack,) I did really well, and the doc said no follow-up. I regularly walk on a treadmill, so I think that helped. BUT...that was before CF meds, and their side effects, like...
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    Stress Test

    I had a stress test a few years before being diagnosed. (I had been shoveling snow and thought I was having a heart attack,) I did really well, and the doc said no follow-up. I regularly walk on a treadmill, so I think that helped. BUT...that was before CF meds, and their side effects, like...
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