Cystic Fibrosis Forum (EXP)

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Recent content by AshleyOlvey

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    Allergies and Nasal Polyps 9 year old daughter

    Sinus help Try using the Sinusgator (battery operated "Netti pot." My 5 yo CFer (with polyps) had trouble using the traditional pot, but does much, much better with the sinusagator (by Neilmed). She (as well as me- no CF) get sinus infections every 2-4 months & we have been problem free since...
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    Help with Sputum Culture Results

    On May 22nd we went in for our 1st "birthday appointment" & my daughter apparently swabbed positive for Pseudomonas. However, we never got this result until the day after we were admitted to the hospital (8 day stay) 7 weeks after our swab was taken. The Pulmonologist that was rounding asked how...
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    DDF508

    My 10 month old little girl, Boston has heterozygous mutations: DDF508 & R553X. She was diagnosed via the Metabolic Screening that CF was added to a few years back. They do this Metabolic Screening when the babies are 48 hrs old in the hospital. We were called by our pediatrician when she was 11...
  4. A

    DDF508

    My 10 month old little girl, Boston has heterozygous mutations: DDF508 & R553X. She was diagnosed via the Metabolic Screening that CF was added to a few years back. They do this Metabolic Screening when the babies are 48 hrs old in the hospital. We were called by our pediatrician when she was 11...
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