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LookingforPeace- One day at a time! My Dad's twin brother is also in lates stages of IPF. Know that you are not alone, and that your brother wants you to live and enjoy every single day.
Wild Cherry, I'm sending hugs your way! Our family was where you are at a couple of months ago. I drove myself crazy trying to convince myself that my neice did not have this disease or try to assure myself that she would have a "mild" case. Thank God, so far so good. She's beautiful, and...
From everything that I have studied, the child must receive a mutation from both parents. That is the difference between a carrier and somebody who has the disease. My niece has R1066h and D508, she is also being treated at a reputable CF center. All of the Dr.'s advised that R1066H was a...
Hi Steve! I have been researching my niece's second mutation, R1066H, I have been finding conflicting information regarding what class it is in. Some info. is telling me it's a Class IV and other info. is saying it's a Class II. Any information would be greatly appreciated. I am new to the...
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