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I have never heard of asperillgus - but thanks for the information i will definitely look into it - and thank u very much for your kind thoughts, definitely appreciated!<img src="i/expressions/face-icon-small-smile.gif" border="0">
My daughter cultured pseudomonas at six months age - she is now 3 and is doing very well so dont think that the road is all downhill from here!!! I was devastated and thought that she was going to have one huge battle on her hands but this has not been the case for her and when the specialist...
My 3 yr old daughter had ear polyps removed recently, grommets inserted and a tune up. Since returning home muck was coming out of her ear so she went on cipro ear drops but they hurt her too much so she was put on oral cipro. The yuck that came out of her sinuses was revolting!!! - and she...
There is an Australian Band who have a song on CD titled "65 Roses" and also they have another song called "can somebody help" about a little girl with CF. The band is called "The Wolverines".
My daughter has been doing PEP combined with percussion since she was 18 months old - and the combination really helps her cough up mucus. Also i find with her it gives me a good indication if she is not well - if she blows really easily into it then i know her lungs are clear, but she can have...
When my daughter was a baby, i used to roast her veges in oil then mash them up with alot of butter, cook up mince with gravy and puree for extra protein as well. Avocado mashed with banana was another goodie when she was a baby.
With pseudomonas I find that my daughter gets sick very quickly with high temps and goes right off her food as opposed to other type of infections - she also has a deeper and wetter cough immediately as opposed to other infections which are slower to worsen. Everyone is different though - it...
Can anyone tell me more about the vests I read about on this website that are used for physio? Are they available for children? How often do you use them and what countries use them? I am curious to learn more about them. Many thanks!
My partner didnt' want our daugher to participate in the broncopsopy? trial so we don't get the inhaled tobi after the 2 weeks IV, but everyone Ive spoken too sings its praises and says it has cleared pseudomona and other bacteria completely - good luck for the rest of the trial.
My partner didnt' want our daugher to participate in the broncopsopy? trial so we don't get the inhaled tobi after the 2 weeks IV, but everyone Ive spoken too sings its praises and says it has cleared pseudomona and other bacteria completely - good luck for the rest of the trial. My daughter...
They haven't offered inhaled tobramycin to us yet , I dont think they give it to under 5s unless they are in a trial in Oz, but I could be wrong? Has anybody in Oz had inhaled Tobra with their under 5s? I wouldn't mind trying it as she normally uses Colistin? Is Tobramycin an American drug?
My 3yr old has had pseudomonas since 6mths old, Im wondering what treatments other kids do that i could do to enhance her health adn minimise recurring infections - we do the physio every day comprising the patting and pep masks, trampolining and blowing bubbles and general 3yr old activities...
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