Recent content by baco623

What is the best way to sterilize your nebulizer pieces (the mouth pieces and the pieces the meds go into)? I usually just put them in hot water for an hour then rinse them off but I am finding that they don't seem very clean even when I do that. Should I be using a special kind of soap or...

Now that I have finally found a job (31 interviews later... being a new college grad really sucks) I need to turn my attention to taking better care of myself. I hate to admit it but during this long drawn out job hunting process I have neglected my health. I have been doing much better with...

I was just curious if anyone has heard of someone having both CF and asthma at the same time? I had my double lung transplant 3 years ago this September and within the last couple of months I have been experiencing these strange fits of real shortness of breath all of a sudden. They last for...

Is anyone else on any type of sleep medication? If so what kind and how much? I am having so much trouble sleeping as of late. I don't know if it is stress I don't know if my body is just being funky but I am completely exhausted and I have been missing my workouts just cause I am so...

Hey Aboveallislove, I didn't get it, try sending it to my e-mail, did you get my e-mail address?

Thanks everyone so much, hearing that I am not alone has really been a boost for me tonight. Especially since I had a horrible interview today (lets just say I am considering contacting the Better Business Bureau to talk to them about the way the manager acted and interviewed me, enough said)...

I have been out of college now for a little bit and I am desperately searching for a job. I live in California and have decided to go back into the hospitality/restaurant industry because that's where I have the most experience however finding a job has been much much more difficult than I ever...

Here is my opinion from a CFer who is 26 years old and has had a little insight into this exact issue. I was exactly like your daughter was when I was 14 years old. I didn't want to do any of my treatments, I didn't want to listen to my doctors in any way, I hated to be nagged, I wanted to be...

Rebjane - I have to tell you what your daughter is doing is completely normal for her age, especially for a preteen with CF. I am a 26 year old female with CF, CFRD and I had a double lung transplant when I was 24. I was completely like your daughter is acting at her age. I really didn't care...

I am a little embarrassed to talk about this but I am learning that it is better to talk about whats going on rather then keep things inside, that has been the crux of my problems for years. I have had cystic fibrosis since I was born. I was diagnosed with cystic fibrosis related diabetes when...

Breatheforher, - I completely understand how your daughter feels. I was so incredibly overwhelmed by the thought of having to get a transplant. I honestly didn't want to do it at first. Its funny cause that is how quickly my PFT's dropped at her age. I have read through the research I have...

Hi Robbiekay, I am 26 years old, I have both cystic fibrosis and cystic fibrosis related diabetes and I received a successful lung transplant when I was 24 years old. I like you son began the evaluation process when I was 22. I'm not going to lie, the process takes a bit of time depending on...

I have both cystic fibrosis and CFRD (cystic fibrosis related diabetes). I was diagnosed with CF at birth and CFRD when I was 13. First just because you have CF doesn't mean you will get CFRD. In all the research I have done it is my understanding that about 40% of people with CF will develop...

This is so wonderful to hear!! I am so glad that your son seems to be thriving. How old is he? I had my GI tube first removed when I was 13. As you can imagine, being a 13 year old girl going into my freshman year of high school was trying enough, I was thriving at the time so I didn't need...

I totally understand how you feel, I absolutely hated hospitals. But your doctor is right when it comes to the hospital IV's vs. the at home IV's, generally you do better in the hospital. I have been in the hospital more times then I can count and I have found that if you make your room...