Cystic Fibrosis Forum (EXP)

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Recent content by Bbedrock

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    What to ask for on the 504 plan? - Daughter Pancreatic Sufficient

    In addition to the above, depending on your climate/humidity, air conditioning. The tempature and humidity in the schools can far exceed the outside temps. DS' first elementary school principal suggested it, and now 3 schools later, district is still accommodating. If the classroom is not...
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    What can we expect?

    We were in your steps 13 years ago. What to expect - who knows!? Our son is age 13 and we are always waiting for the other shoe to drop! 13 years ago, the Director of ouf CF Center firmly believed and told us he expected a cure in 10 years - didn't happen. We as well were told DD FF08 was a...
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    Looking for a CF Center in Northern NJ or NYC

    I second patrish22. Goryeb Children's/Morristown Memorial is excellent! My son has been going there since diagnosis 13 years ago. Great doctors - would highly recommend Drs. Cooper and Wazeka. Great nursing staff and social worker. Good luck!
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    Only Child - NEED HELP WITH CHEST THERAPY

    Hit a wrong button. Posted too fast. Anyway, as to school, we have aways made arrangements to do CPT at school and the school was quite accomodating. Our clinic tells us we are the anomaly; once most parents get the vest that is what they do. We do both, and, again, it is much more...
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    Only Child - NEED HELP WITH CHEST THERAPY

    I have never replied before, but your post prompted me to. Our DS is also an only child. Although some may think it is easier with only one child, it raises many additional challenges which is outside of this thread. In any event, I would encourage you to continue to do manual CPT. We went...
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    Only Child - NEED HELP WITH CHEST THERAPY

    I have never replied before, but your post prompted me to. Our DS is also an only child. Although some may think it is easier with only one child, it raises many additional challenges which is outside of this thread. In any event, I would encourage you to continue to do manual CPT. We went...
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