Recent content by Bella's-mom

Should I be sterilizing the nebs? Our CF team said its not necessary but after reading comments I'm wondering if I should. I have a baby bottle sterilizer that I could use. If using do I take it all apart. Do I use distilled water. How long should I be microwaving it for? Thanks

Our clinic in Canada won't support the vest. My daughter is almost 11 months old and fights physio tooth and nail. It's such a struggle but the best times of day for us is first thing in the morning and late evening. She screams and fights at times but we just keep on pounding. One day I hope...

My daughter is most likely getting a g tube soon. We see the dr in 2 weeks. Not able to answer any of your question but I'm here with you in spirit. Good luck

My daughter who's almost 11 months has been on it since she was 6 weeks old. She takes it once a day.

So we finally had the talk today about putting a g-tube in my 10 month old. She's just not gaining any weight and won't eat. It would be for over night feeds. Any advice?

She gets nebulizer treatments of ventolin, pulmocort and pulmozyme. She sometimes falls asleep to the nebs but wakes immediately when cpt is started.

Just wondering if giving too much enzyme will cause diarrhea. My daughter isn't the greatest eater and when she does eat its very slowly. I'm not sure if her diarrhea is being caused by too much enzymes.

Wondering if anyone has tips and tricks for cpt on an active 10 month old. She won't sit still, hates her nebulizers and screams bloody murder.....help.

So I have ordered the book and just waiting for it to arrive. I hope this works

Thanks, gonna go buy it tomorrow

Just wondering about feeding tubes and babies. I have a 10month old who was at the 25% but has dropped down to the 5th. She's being referred to a gi doctor cause she refuses to eat. She will be scoped and then we will go from there. Any advice

My daughter wouldn't nurse so I've been pumping for the last 10 months. She gets breast feed bottles and the formula I put in her Jared food. It's the only way she'll take it. You do what works for you. My dietician doesn't like the way I'm doing it but at least it's getting in.

Just wondering what your thoughts are on chiropractic care for a cfer. Does it help? Does it improve lung function and overall well being. Considering it for my daughter.

Thanks for all the replies. At the moment she's on Prevacid, creon, aquaADEKs, ventolin, pulmocort, pulmozyme and amoxicillin for a chest and ear infection. We are doing cpt for 30 minutes three times a day. She is breastfeed and supplemented with hypoallergenic formula. She's not a good...

I have a 9 month old with cf and just wondering what other parents are doing for treatment, what meds are you kids on. Any tricks of the trade.