Recent content by bengismom

I know that its hard to hear that hospice is whats gonna happen but i guess he will be comfortable its so sad hes only 8 months old but everyday i have him is a blessing he is the sweetest baby but he is in gods hands now just please say prayers for him i will fight till the end for my baby if...

I know that its hard to hear that hospice is whats gonna happen but i guess he will be comfortable its so sad hes only 8 months old but everyday i have him is a blessing he is the sweetest baby but he is in gods hands now just please say prayers for him i will fight till the end for my baby if...

I know that its hard to hear that hospice is whats gonna happen but i guess he will be comfortable its so sad hes only 8 months old but everyday i have him is a blessing he is the sweetest baby but he is in gods hands now just please say prayers for him i will fight till the end for my baby if...

My son ben has a really hard time with weight gain he is about 12 pd he is 8 1/2 months old he has been in the hospital since nov.6th his sweat test came back normal but his ambrey genetic dna test showed cf delta f508 mutaion duplication and 5t variant he is being sent home with hospice soon we...

My son ben has a really hard time with weight gain he is about 12 pd he is 8 1/2 months old he has been in the hospital since nov.6th his sweat test came back normal but his ambrey genetic dna test showed cf delta f508 mutaion duplication and 5t variant he is being sent home with hospice soon we...

My son ben has a really hard time with weight gain he is about 12 pd he is 8 1/2 months old he has been in the hospital since nov.6th his sweat test came back normal but his ambrey genetic dna test showed cf delta f508 mutaion duplication and 5t variant he is being sent home with hospice soon we...

Thanks for the info on the calories and mct oils. Mabey he is on to many things at one time,oils,calories(34cal total)with continued feeds through his g tube.This is really hard to go through they are talkin about sending us home with hospice,He does not seem to get any better.But with the info...

Thanks for the info on the calories and mct oils. Mabey he is on to many things at one time,oils,calories(34cal total)with continued feeds through his g tube.This is really hard to go through they are talkin about sending us home with hospice,He does not seem to get any better.But with the info...

Thanks for the info on the calories and mct oils. Mabey he is on to many things at one time,oils,calories(34cal total)with continued feeds through his g tube.This is really hard to go through they are talkin about sending us home with hospice,He does not seem to get any better.But with the info...

Benjamin is loosing weigth every day and is in bad shape , He has been in the hospital since nov. 6th and has just been going down hill since ,.......(how do you get your daughter to gain weight?) 44 was his sweat chloride and yeah hes on this neocate 27cal formula with mct oils, Yes, i did...

Benjamin is loosing weigth every day and is in bad shape , He has been in the hospital since nov. 6th and has just been going down hill since ,.......(how do you get your daughter to gain weight?) 44 was his sweat chloride and yeah hes on this neocate 27cal formula with mct oils, Yes, i did...

Benjamin is loosing weigth every day and is in bad shape , He has been in the hospital since nov. 6th and has just been going down hill since ,.......(how do you get your daughter to gain weight?) 44 was his sweat chloride and yeah hes on this neocate 27cal formula with mct oils, Yes, i did...

<img src="i/expressions/face-icon-small-shocked.gif" border="0">my 8 month old passed the sweat test and just got bad news about 2 weeks ago that the blood work was positive for the delta f508 duplication , this is really confussing to go through.

<img src="i/expressions/face-icon-small-shocked.gif" border="0">my 8 month old passed the sweat test and just got bad news about 2 weeks ago that the blood work was positive for the delta f508 duplication , this is really confussing to go through.

<img src="i/expressions/face-icon-small-shocked.gif" border="0">my 8 month old passed the sweat test and just got bad news about 2 weeks ago that the blood work was positive for the delta f508 duplication , this is really confussing to go through.