Recent content by billsmom

Steve, My son as the DF508, and 405+1G-A mutation. I can't find much online regarding the second one, except that it is predominantly Jewish and that there was a 20 year old girl in Germany back in 1993 that had the same two mutations, and was doing well. It was a study on a "donor splice"...

I am HR for my company (37 employees) and also mom of a CFer. We have an Aetna PPO. I have never had any issues getting anything for my son - his vest, meds, equipment, etc... so I HIGHLY recommend them. Not an HMO though - a PPO The more employees you have, the better group rates you will...

I am HR for my company (37 employees) and also mom of a CFer. We have an Aetna PPO. I have never had any issues getting anything for my son - his vest, meds, equipment, etc... so I HIGHLY recommend them. Not an HMO though - a PPO The more employees you have, the better group rates you will...

I am HR for my company (37 employees) and also mom of a CFer. <br /> <br />We have an Aetna PPO. I have never had any issues getting anything for my son - his vest, meds, equipment, etc... so I HIGHLY recommend them. Not an HMO though - a PPO <br /> <br />The more employees you have, the...

tleigh, Thank you for responding. Did you take any precautions for exposure to things like hay and manure? My son literally plays in hay and in dirt stalls that have urine and manure in them. I truly hope my son grows up riding horses with his father, and can enjoy that type of life, because...

tleigh, Thank you for responding. Did you take any precautions for exposure to things like hay and manure? My son literally plays in hay and in dirt stalls that have urine and manure in them. I truly hope my son grows up riding horses with his father, and can enjoy that type of life, because...

tleigh, Thank you for responding. Did you take any precautions for exposure to things like hay and manure? My son literally plays in hay and in dirt stalls that have urine and manure in them. I truly hope my son grows up riding horses with his father, and can enjoy that type of life, because...

tleigh, Thank you for responding. Did you take any precautions for exposure to things like hay and manure? My son literally plays in hay and in dirt stalls that have urine and manure in them. I truly hope my son grows up riding horses with his father, and can enjoy that type of life, because...

tleigh, <br /> <br />Thank you for responding. Did you take any precautions for exposure to things like hay and manure? My son literally plays in hay and in dirt stalls that have urine and manure in them. <br /> <br />I truly hope my son grows up riding horses with his father, and can enjoy...

My son's father lives on a farm. We are not together, and do not get along. Unfortunately, co-parenting isn't possible with him, so I've petitioned for full custody of my son, Billy. He is 3, with CF. One of my major concerns for my son is the farm. His father does NOT put a mask on him...

My son's father lives on a farm. We are not together, and do not get along. Unfortunately, co-parenting isn't possible with him, so I've petitioned for full custody of my son, Billy. He is 3, with CF. One of my major concerns for my son is the farm. His father does NOT put a mask on him...

My son's father lives on a farm. We are not together, and do not get along. Unfortunately, co-parenting isn't possible with him, so I've petitioned for full custody of my son, Billy. He is 3, with CF. One of my major concerns for my son is the farm. His father does NOT put a mask on him...

My son's father lives on a farm. We are not together, and do not get along. Unfortunately, co-parenting isn't possible with him, so I've petitioned for full custody of my son, Billy. He is 3, with CF. One of my major concerns for my son is the farm. His father does NOT put a mask on him...

My son's father lives on a farm. We are not together, and do not get along. Unfortunately, co-parenting isn't possible with him, so I've petitioned for full custody of my son, Billy. He is 3, with CF. <br /> <br />One of my major concerns for my son is the farm. His father does NOT put a...

Thanks... I was extremely close to a total breakdown on Friday, three days after the diagnosis. But today I am okay. I don't know if this will be an emotional rollercoaster type of thing, but as of right now I am really trying to feel hopeful and optimistic.