Recent content by biz

i pray for a cure every night and when i see my son suffer. im not an optimist. never have been. and in my honest opinion no i dont think there will be a cure. and the only reason i believe that is because the money is in the meds for cf not the cure for cf. insurance, docs, pharm, and anyone...

Aidan has cultured staph for almost 2 years now. the only time we cover it is when he has an exhaberation and is very ill and hes on abx. they also put him on bactrim to cover the other bugs he has cultured. hes got like 3 of them he always cultures. pseudo is also one of them, and i was told...

i really wish they would ahow Eva's story on a local channel. like ABC that EVERYONE gets. i posted on fb about it and when and what channel it comes on and no1 watched it. that makes me really sad...

i really wish they would ahow Eva's story on a local channel. like ABC that EVERYONE gets. i posted on fb about it and when and what channel it comes on and no1 watched it. that makes me really sad...

im not too sure if the fit for my 6 year old is right either. he started with the black one when he was three then we switched to the blue one when he was 5. with the black one i was told when it is inflated i should be able to fit my closed fist in it. so i just do the same with the blue one...

im not too sure if the fit for my 6 year old is right either. he started with the black one when he was three then we switched to the blue one when he was 5. with the black one i was told when it is inflated i should be able to fit my closed fist in it. so i just do the same with the blue one...

my 6 year old son is on Tobi month on and month off probably for the rest of his life. freakin 6 years old. ugh i hate that. we were on cayston but they kicked us out cause of the shortage so were using tobi again. it is a lot of time and aidan really doesnt like it. but we have to keep that...

my 6 year old son is on Tobi month on and month off probably for the rest of his life. freakin 6 years old. ugh i hate that. we were on cayston but they kicked us out cause of the shortage so were using tobi again. it is a lot of time and aidan really doesnt like it. but we have to keep that...

im wondering if we can get food stamps for Aidan. we finally got medicade for him. and food stamps would be very helpful. i spent 235.00 at the food store today and it was all for aidan. im gona apply and see what happens. does anyone out here get them even though you and or your spouce works...

im wondering if we can get food stamps for Aidan. we finally got medicade for him. and food stamps would be very helpful. i spent 235.00 at the food store today and it was all for aidan. im gona apply and see what happens. does anyone out here get them even though you and or your spouce works...

Aidan has developed severe sinus issues. chronic sinus infection that always led to picc lines. then a 2 hr surgery to remove blockages in his sinuses. that really helped. i would suggest getting to see an ENT. then after the surgery we tried sinus rinses and he cant do them. i tried my best and...

Aidan has developed severe sinus issues. chronic sinus infection that always led to picc lines. then a 2 hr surgery to remove blockages in his sinuses. that really helped. i would suggest getting to see an ENT. then after the surgery we tried sinus rinses and he cant do them. i tried my best and...

it really upsets me how bad my sons sleeping is when hes on iv. ugh the hospital is a nightmare. in those 4 or five days were there it caos. the shift changes and having to review everything all over again with the nurses. his machine beeping all the time. waiting for them to unhook him cause...

it really upsets me how bad my sons sleeping is when hes on iv. ugh the hospital is a nightmare. in those 4 or five days were there it caos. the shift changes and having to review everything all over again with the nurses. his machine beeping all the time. waiting for them to unhook him cause...

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