Cystic Fibrosis Forum (EXP)

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Recent content by BleedOrange1968

  1. B

    how tall are you?how much do you weigh?

    I'm Darryl, 44 I'm 6'2" I weigh 193
  2. B

    how tall are you?how much do you weigh?

    I'm Darryl, 44 I'm 6'2" I weigh 193
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    looking for friends to talk to with cf (:

    I'm Darryl and am 44 w/cf what u wanna talk about?
  4. B

    looking for friends to talk to with cf (:

    I'm Darryl and am 44 w/cf what u wanna talk about?
  5. B

    what to use to soothe irritated airways

    I had to stop it cause it was so aggravating! Take hypertonic saline instead
  6. B

    what to use to soothe irritated airways

    I had to stop it cause it was so aggravating! Take hypertonic saline instead
  7. B

    Sinus surgery?

    I've had two. One in 03 to make a way for an abscess to get out. That was pretty bloody. Make sure u get a vit k supplement from ur doc b4 surgery so u won't bleed as bad. Or just have them run a vit k level on u n c if u clot good. Had another one in 07. Thought I had fungus growing but I...
  8. B

    Sinus surgery?

    I've had two. One in 03 to make a way for an abscess to get out. That was pretty bloody. Make sure u get a vit k supplement from ur doc b4 surgery so u won't bleed as bad. Or just have them run a vit k level on u n c if u clot good. Had another one in 07. Thought I had fungus growing but I...
  9. B

    Kalydeco - insurance approval?

    Thanks so much for all this info! I am going Friday to my doc. She better get me a script!!! I called Caremark and they cover it for me at an $80 copay a month. I'm taking all these postings with me. Pray pray pray!! Darryl, 44 w/cf --(DF508 & 3272-26A>G) was dx at 24
  10. B

    Kalydeco - insurance approval?

    Thanks so much for all this info! I am going Friday to my doc. She better get me a script!!! I called Caremark and they cover it for me at an $80 copay a month. I'm taking all these postings with me. Pray pray pray!! Darryl, 44 w/cf --(DF508 & 3272-26A>G) was dx at 24
  11. B

    Anyone on Kayldeco and not G551D? Is it helping?

    I want to try it and see if it helps me. I have f508 and 3272-26a>g and it's a splicing mutation class I or IV. It's known usually as having mild to moderate CF. I called my ins.(Cigna) and they said it was covered, just to get my doctor to send a script. Hope it's that easy, I go Friday to see...
  12. B

    Anyone on Kayldeco and not G551D? Is it helping?

    I want to try it and see if it helps me. I have f508 and 3272-26a>g and it's a splicing mutation class I or IV. It's known usually as having mild to moderate CF. I called my ins.(Cigna) and they said it was covered, just to get my doctor to send a script. Hope it's that easy, I go Friday to see...
  13. B

    I am f508 and 3272-26a>g. How do I know if mine is gating and what class I'm in?? Darryl 44 dx 24

    I am f508 and 3272-26a>g. How do I know if mine is gating and what class I'm in?? Darryl 44 dx 24 What does the script need to say Anomie?
  14. B

    I am f508 and 3272-26a>g. How do I know if mine is gating and what class I'm in?? Darryl 44 dx 24

    I am f508 and 3272-26a>g. How do I know if mine is gating and what class I'm in?? Darryl 44 dx 24 What does the script need to say Anomie?
  15. B

    I am f508 and 3272-26a>g. How do I know if mine is gating and what class I'm in?? Darryl 44 dx 24

    I am f508 and 3272-26a>g. How do I know if mine is gating and what class I'm in?? Darryl 44 dx 24 Thanks havoc! Would be nice to talk to one of the geneticists
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