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Leah, Never on IVs ! Thats great ... I have had enough IV meds to float a boat .Nice PFTs also.
Mine have been below 50 for 22 yrs, in low 30s now.. low 20s when sick.
What ever you are doing Leah, Keep it up !
Ask to Speak to the Head/ Floor Nurse , Explain to her what is going on and DEMAND a New/Better Nurse for Your Son..
It will work, I have done it more than once... Plus is makes the Rude Nurse look bad in the eye's of the other Nurse's
This may make her change her ways..
I have then now from botched ABG's. I got a Pic this time as soon as I got admitted.
Both wrists are black and blue.. I gave the tech 2 trys in each wrist, Then I told hin to get a
Tech with more experience, She came in pop, done... She did another 4 days later. No problem.
I tried the...
I use O2 at night also, at first I would wake up with it in my had, but after a while
it says on all night. It does help me sleep through the night. I am only on 1.5 ltrs.
I had a cold recently and it was great to have it already there with out having to go
in the hospital.....But....my...
Find a New Doc..
I am sorry to say ,if Your Child has 2 mutations, She does have Cf...
I have almost not GI issues and Lung issues were mild until I was 29 ish.
The Docs told my Mother I had no Cf.. when My Oldest Brother was diagnosed at 19 with Cf
all of us were tested.. 4 of the 5 us...
I tried the little gray Pari Lc Plus. 2 pooped out in 3 months time.
Went back to my Ole Pulmo aide's ... I have had them for years and they are bigger , model 5052b I believe.
Pari vios looks to be a remake of the gray Lc Plus. I used one the other day and it did seem to
have more pressure...
I Wonder when everyone realizes that Pres Obama's Healthcare Plan is working
Will those who Knock it Still call it ObamaCare... I Think not..
Obama's Health Care may not be perfect, BUT!! It is a start, We Now Have a Plan. It's a Good Start !
Every Pres back to Nixon Agreed that We need to...
I went through 2 of those little Pari's in just over 3 months.
I went back to my Pulmo-Aids.. They have worked great for years.
Good Luck.. Pari has a 5 year Replacement Warranty . But 2 in 3 months is just a pain.
They are made in Mexico . maybe that is the problem,
My Mother has most of the Cf Symptoms, but is only a Carrier. It is of course getting worse
as She gets older. My Father had some symptoms also before He passed.
dbtoo I went through that "sleep " study also. The one at home with the Cloths pin type finger cuff
that kept falling off which low readings, . You are correct the folks that do these studies are in the business on Selling Products. There is more I could say about my home study. I started...
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