Recent content by breatheforher

I have Hashimotos and still have my thyroid. Was diagnosed at 29 and now 45. Hashimotos is autoimmune disease and not "caused" by medications - though some meds, foods, etc can cause flare up of the symptoms. How do they know you have Hashimotos ?? It takes special bloodwork (autoimmune...

My daughter did not have much pain with the first port and it healed up beautifully. She was diligent with using cocoa butter on the scar several times a day and protecting it from the sun and in time you couldnt even see the scar anymore. Her first port lasted 8 years then had to be replaced...

My daughter is not currently as bad as you described yourself. She was just placed on 24/7 oxygen because her sats are now in low 80s. She is still active but slowing down and spends alot of time sleeping. She will start seeing a counselor this week and I hope that helps. She is a little...

My daughter (age 20) was told in December that it was time to get listed. Her PFTs dropped from 40% to 22% within 3 months and they have stayed 22% - 28% since December. We went thru the evaluation and the team met then had meeting with us. Daughter was told she was approved to be listed and she...

My daughters MRSA was eradicated 3 years ago and her health declined greatly with regards to plummeting PFTs in 70s to 28. My daughter had MRSA and Pseudomonas. Now (and past 3 years) only Pseudomonas. I started doing alot of research after eradication of MRSA and actually found articles that it...

My daughters MRSA was eradicated 3 years ago and her health declined greatly with regards to plummeting PFTs in 70s to 28. My daughter had MRSA and Pseudomonas. Now (and past 3 years) only Pseudomonas. I started doing alot of research after eradication of MRSA and actually found articles that it...

My daughter is 18 - DDF508 - diagnosed at 15 months. FEV1 28% - hospitalized every 3 months for the past 3 years. She also has asthma, CFRD, osteoporosis, osteoarthritis, g/tube, port, gallbladder removed age 7 related to CF, 5 pathological fractures r/t CF........the past 3 years have been very...

My daughter is 18 - DDF508 - diagnosed at 15 months. FEV1 28% - hospitalized every 3 months for the past 3 years. She also has asthma, CFRD, osteoporosis, osteoarthritis, g/tube, port, gallbladder removed age 7 related to CF, 5 pathological fractures r/t CF........the past 3 years have been very...

My daughter had her first port for 12 years and the only reason it was replaced was because she outgrew it. When the second one was put in the surgeon said if we took as good care as we did with first one it would last the rest of her life. The surgeon spent alot of time discussing placement and...

My daughter had her first port for 12 years and the only reason it was replaced was because she outgrew it. When the second one was put in the surgeon said if we took as good care as we did with first one it would last the rest of her life. The surgeon spent alot of time discussing placement and...

(scanboyd) Are you a double DF508 ??

(scanboyd) Are you a double DF508 ??

My daughter also sucks on hard candy with her neb treatments. Really helps mask the taste (especially if doing vanc or tobi nebs) and helps mouth stay moist. Another really good clearance device is the acapella. Children - especially young like your daughter have trouble using the flutter the...

My daughter also sucks on hard candy with her neb treatments. Really helps mask the taste (especially if doing vanc or tobi nebs) and helps mouth stay moist. Another really good clearance device is the acapella. Children - especially young like your daughter have trouble using the flutter the...

Never heard of it. My daughter has used NeilMed sinus rinse for 11 years now.