Recent content by brematt

I realize I am still in shock mode. It's so hard to believe that he has cf. What I mean by "hard" is that he doesn't look or act sick. That makes it hard to go through the daily treatments. It's easier to remember the enzymes and vitamins because we immediately experience the effect of...

I realize I am still in shock mode. It's so hard to believe that he has cf. What I mean by "hard" is that he doesn't look or act sick. That makes it hard to go through the daily treatments. It's easier to remember the enzymes and vitamins because we immediately experience the effect of...

I realize I am still in shock mode. It's so hard to believe that he has cf. What I mean by "hard" is that he doesn't look or act sick. That makes it hard to go through the daily treatments. It's easier to remember the enzymes and vitamins because we immediately experience the effect of...

What is haunting me now, 1 month after dx, is how cf will progress for my son. On one hand, he's been healthy enough to not get dx for 11 years. His symptoms have mainly been related to pancreatic insufficiency. So we are dealing with the ill effects of 11 yrs of vitamin deficiencies and...

What is haunting me now, 1 month after dx, is how cf will progress for my son. On one hand, he's been healthy enough to not get dx for 11 years. His symptoms have mainly been related to pancreatic insufficiency. So we are dealing with the ill effects of 11 yrs of vitamin deficiencies and...

What is haunting me now, 1 month after dx, is how cf will progress for my son. On one hand, he's been healthy enough to not get dx for 11 years. His symptoms have mainly been related to pancreatic insufficiency. So we are dealing with the ill effects of 11 yrs of vitamin deficiencies and...

I think the biggest problem would be intestinal discomfort for him. My son has had pancreatic insufficiency his entire life and wasn't dx until age 11, which means malabsorption for a very long time. He has had a lot of vitamin deficiency related problems because of it. But that's over a span...

I think the biggest problem would be intestinal discomfort for him. My son has had pancreatic insufficiency his entire life and wasn't dx until age 11, which means malabsorption for a very long time. He has had a lot of vitamin deficiency related problems because of it. But that's over a span...

I think the biggest problem would be intestinal discomfort for him. My son has had pancreatic insufficiency his entire life and wasn't dx until age 11, which means malabsorption for a very long time. He has had a lot of vitamin deficiency related problems because of it. But that's over a span...

My son was dx in Dec, at age 11. I swear my parents had a genetic test done the next day to see which side of the family it came from! They even contacted extended family on both sides to let them know they were having it done. The difficulty now is this, who should start the testing? For...

My son was dx in Dec, at age 11. I swear my parents had a genetic test done the next day to see which side of the family it came from! They even contacted extended family on both sides to let them know they were having it done. The difficulty now is this, who should start the testing? For...

My son was dx in Dec, at age 11. I swear my parents had a genetic test done the next day to see which side of the family it came from! They even contacted extended family on both sides to let them know they were having it done. The difficulty now is this, who should start the testing? For...

Re: sweat testing on infants. Everything I've read says that sweat testing on young children can be unreliable because they may not be able to produce enough sweat. I'm still learning about all of this (my son was dx in December at Deaconess, Spokane), but I would definately continue testing...

Re: sweat testing on infants. Everything I've read says that sweat testing on young children can be unreliable because they may not be able to produce enough sweat. I'm still learning about all of this (my son was dx in December at Deaconess, Spokane), but I would definately continue testing...

Re: sweat testing on infants. Everything I've read says that sweat testing on young children can be unreliable because they may not be able to produce enough sweat. I'm still learning about all of this (my son was dx in December at Deaconess, Spokane), but I would definately continue testing...