Recent content by Bubbalove

Thank you all so much- you have been great help!

Hi again.. one more question.. how do you properly clean your nebulizer cups to ensure that all of the pseudonomas/staff infection may be killed off? I recently bought a baby bottle sterilizer and it states on the box "sterilizes household germs". Do you think that this is sufficient enough or...

Hey everyone- Has anyone had to get a polyp removed? Can you tell me the different procedures that you may go through in order to get one removed and the recovery time? My boyfriend just got his first polyp and we have no idea what types of procedures he may have to undergo. Thanks!

My boyfriend was on IV 2 weeks at a time when he did it the past 3 times.. and he always does it at his home.

Hello again.. My boyfriend gets scabs in his nose from time to time. When he blows his nose, the scabs loosen and bleed. Could these be polyps? Does this happen to anyone else?

Hello- does anyone here with CF ever get really bad night sweats?? My boyfriend gets them every night.. We asked his dr about it and he didnt have an answer for us.. is this CF related?

My boyfriend and I want to get a bird together- We really want a cockatoo.. and I was wondering if anyone has one that has CF bc Im not sure if it is the best thing for him.

My boyfriend does "ET phone home" and puts his finger in the air- bc of his long clubbed fingers, we say they look like ET's. :-)

My boyfriend is the only one in his family with CF.

My boyfriend had to stop taking Levaquin- he didnt get a rash but he was having trouble sleeping, and was having HORRIBLE aches and pains in his joints.. he actually just stopped taking imipenam (his IV medicine) though bc he broke out in a rash.. it was all along his waste and back, and looked...

My boyfriend has had the same "cycle" of medicine for the past few months (until recently- bc he is on IV) where he would do TOBI every other month, and did Pulmozyme everyday.. Why did your dr. tell you not to do them together? He would do one after the other, twice a day... Is that bad?

My boyfriend says it definitely does.. his was so bad once, he sounded like the godfather.. we got a giggle out of it. :-) It lasted a couple of weeks.. drink some nice tea with honey to soothe your throat..

I just wanted to update everyone- my boyfriend was checked for glucose in his blood and the results came back negative.. yay! He doesn't have daibetes- I was scared for a bit b/c he was peeing often and was complaining about his eyes.. but sofar, so good. - I will def. get him an appt with an...

My boyfriend has been on imipenam and ceftaf since Wednesday.. seems that all is well- he already is getting his appetite back and seems to have more energy- there is one problem though.. his skin around his belly, his sides, and part of his back are breaking out in a slight rash. It looks like...

Hello again! :-) Another question I wanted to ask is if anyone has experienced seeing problems that may be due to CF or medications they are on. My boyfriend is on TOBI, Pulmozyme, Zithromax, and vitamins pretty much on a daily basis. Lately, his eyes have been irritating him- especially if...