Recent content by ButtonNO1

hiya caitlin coughing up blood is scary and it happened to me for the first time last year and i started to scream as i was so scared but i have been told that it is quite noraml to have the ocassion streak of blood in your sputum but if it does persist to see my doctor i do have the ocassional...

hiya diane wot is b. cepacia i have never heard of it ? the first time i coughed up blood was the end of last year and i was screaming cos that had never happened to me before . i never had any problems with my CF until i turned 13 and then i was in hospital but after that i got every bug that...

hiya wot kind of supplement do some of you peeps take and which one do you like best . i take ensure dont really like it but i hold my nose and just drink it cos i think of all the calories . i take enlive as well i like them there lovely and i take scandi shake shame it does not come in banana...

hiya just wondering but do any people with ccf find they have more problems with there chest then there bowel or more with there bowel then there chest . i find that it is all in my chest as i have never had any bowel problems . i had a ultra sound once and the doctor thought i had gallstones...

i agree with wot you said anon and kybert i only joined about a month ago and was quite shocked at some of the things people had said . and then when i posted a thing on needles someone started being very rude and horribel in that i was shocked this is supposed to be a forum were people can get...

hiya heather my name is JO i am 20 w/cf if you want to chat email me at ButtonNO1@aol.com

i take prednisolne although my doctor is now going to take me off of it as us cfers have frail bones due to lack of vitamins and other inportant stuff and as steroids cause things like weak bones he has advised me to come off of them wot do you take steroids for ? if u do not mind me asking ? i...

another thing i did not realise with cipro is that you can get sunburnt alot more when on cipro. this has happened to me several times and i never realied it was cos of cipro until i looked it up in my cf book and it said about it so now i always use factor 60 sun screen when i am on cipro and...

hiya soph so glad that i could help take care and if you have anymore worries you can email me at ButtonNO1@aol.com from JO

Karen hiya my name is Jo i have CF and it has never really affected me to much i have had a fairly normal life apart from school . but the older i get the more trouble i seem to have i get very depressed when i am very ill but seem to pick myself up after a couple of days . I have a very good...

i hate taking cipro i dont get upset stomach with it but it knocks me for six i am always tired lose my appetite and cos i am not hungry i take it on an empty stomach and it makes me feel sick all day . but i have been taken off of it for a little while as the bugs got immune to it so i had to...

my frineds tell me to cough it up and it makes laugh so much i find it helps LOL . when i worked i always used to get comments from customers about my coughing it would be oh you sound terrible or you should quit smoking although it never bothered me really cos they weren't to know about my...

hiya i have ensure i am not very keen on it either but i pour it in to a glass and hold my nose and drink i just think of all the calaries it has lol . have you tried scandi shake it is milkshake but one you make yourself it comes in strawberry ,vanilla,and choclate and if you put ice cream in...

THAT IS DIFFRENT THAT PERSON HAS HAD A BAD EXPERIENCE SO IT WILL AFFECT THEM NEXT TIME THEY HAVE A NEEDLE OR PICC LINE . BUT IT IS NOT IN PEOPLES HEAD SO STOP SAYING IT IS THIS IS A FORUM WEAR PEOPLE DISCUSS THERE CF PROBLEMS AND WORRIES AND YOU SHOULD RESPECT WOT PEOPLE SAY IF THEY ARE SCARED...

I THINK YOU HAVE TO BE REGISTERED TO GET TO THE CHATROOM . I DO NOT HAVE A CHILD BUT I HAVE CF FROM JO 20 FROM UK <img src="i/expressions/face-icon-small-smile.gif" border="0">