Recent content by CAandCFnewbie

I haves had 2 long courses of 3 MAC drugs. I probably had it for years prior to my 1st treatment, I was seeing a "lung specialist" and only after my brother in MN had a massive bleed and NO OTHER SYMPTOMS was dx for MAC that I bullied, questioned, begged for some definitive dx of symptoms of no...

I haves had 2 long courses of 3 MAC drugs. I probably had it for years prior to my 1st treatment, I was seeing a "lung specialist" and only after my brother in MN had a massive bleed and NO OTHER SYMPTOMS was dx for MAC that I bullied, questioned, begged for some definitive dx of symptoms of no...

I haves had 2 long courses of 3 MAC drugs. I probably had it for years prior to my 1st treatment, I was seeing a "lung specialist" and only after my brother in MN had a massive bleed and NO OTHER SYMPTOMS was dx for MAC that I bullied, questioned, begged for some definitive dx of symptoms of no...

My lungs are sensitive to position too. My CF doctor said it's typically easier to lay on your left side because of your heart and the way the structures interact(your heart puts weight and pressure on your right lung). I also have mucous plugs and sometimes lots of bleeding. The newest is that...

My lungs are sensitive to position too. My CF doctor said it's typically easier to lay on your left side because of your heart and the way the structures interact(your heart puts weight and pressure on your right lung). I also have mucous plugs and sometimes lots of bleeding. The newest is that...

My lungs are sensitive to position too. My CF doctor said it's typically easier to lay on your left side because of your heart and the way the structures interact(your heart puts weight and pressure on your right lung). I also have mucous plugs and sometimes lots of bleeding. The newest is that...

Regarding farm vs city: As someone who has cultured Aspergillus (3 types) since 2005 and just recently am experiencing "twitchy" lungs similiar to asthma which may be due to fungal balls and not the typical allergic response, I've done lots of research. You should be aware that asperg. is in the...

Regarding farm vs city: As someone who has cultured Aspergillus (3 types) since 2005 and just recently am experiencing "twitchy" lungs similiar to asthma which may be due to fungal balls and not the typical allergic response, I've done lots of research. You should be aware that asperg. is in the...

Regarding farm vs city: As someone who has cultured Aspergillus (3 types) since 2005 and just recently am experiencing "twitchy" lungs similiar to asthma which may be due to fungal balls and not the typical allergic response, I've done lots of research. You should be aware that asperg. is in the...

It is important to know what tests were performed. A standard screen, as was done on me in Missouri tested for only 25 common -to those populations - mutations. I was told I didn't have any mutations. Minnesota, where I grew up tested for 75. My lung specialist didn't even convey the known...

It is important to know what tests were performed. A standard screen, as was done on me in Missouri tested for only 25 common -to those populations - mutations. I was told I didn't have any mutations. Minnesota, where I grew up tested for 75. My lung specialist didn't even convey the known...

It is important to know what tests were performed. A standard screen, as was done on me in Missouri tested for only 25 common -to those populations - mutations. I was told I didn't have any mutations. Minnesota, where I grew up tested for 75. My lung specialist didn't even convey the known...

It is important to know what tests were performed. A standard screen, as was done on me in Missouri tested for only 25 common -to those populations - mutations. I was told I didn't have any mutations. Minnesota, where I grew up tested for 75. My lung specialist didn't even convey the known...

It is important to know what tests were performed. A standard screen, as was done on me in Missouri tested for only 25 common -to those populations - mutations. I was told I didn't have any mutations. Minnesota, where I grew up tested for 75. My lung specialist didn't even convey the known...

When we had massive fires in California I started paying attention to air quality. I coughed blood the day I had some outside exposure to numbers over 100 (it was off the charts in some areas). I also inhaled some campsite smoke I most definitely tried my best not to inhale- again blood and...