Recent content by cabgodfrey

Is there any discussion of not needing to take enzymes? Has digestion improved with Kalydeco?

Would love to hear more from those of you who are taking Kalydeco. We are living vicariously through you all as our daughter does not have G551D and is anxiously awaiting continued trials of VX809 with Kalydeco. In the meantime, we are very excited for those of you who are able to take...

My daughter just did PFT's yesterday.  She is 13 and her FEV1 is 105%.  No O2.

My daughter just did PFT's yesterday. She is 13 and her FEV1 is 105%. No O2.

My daughter just did PFT's yesterday. She is 13 and her FEV1 is 105%. No O2.

Hi, Is your husband still having good results with Zenpep? Does he take them all before he eats or some during? My daughter has been on Creon her whole life but she is not hungry and having a lot of digestive issues. Thought Zenpep might be worth trying. Thanks! Carrie Godfrey

Hi, Is your husband still having good results with Zenpep? Does he take them all before he eats or some during? My daughter has been on Creon her whole life but she is not hungry and having a lot of digestive issues. Thought Zenpep might be worth trying. Thanks! Carrie Godfrey

Hi, <br /> <br />Is your husband still having good results with Zenpep? Does he take them all before he eats or some during? My daughter has been on Creon her whole life but she is not hungry and having a lot of digestive issues. Thought Zenpep might be worth trying. <br /> <br />Thanks! <br...

Wow, I have heard that Mucinex dries up the mucus in the lungs and other areas of the body and it isn't able to get out so it clogs the airways and sinuses, etc. That is why they prescribe hypertonic saline or Pulmozyme, because those meds moisten the mucus and allow it to be coughed up and...

Wow, I have heard that Mucinex dries up the mucus in the lungs and other areas of the body and it isn't able to get out so it clogs the airways and sinuses, etc. That is why they prescribe hypertonic saline or Pulmozyme, because those meds moisten the mucus and allow it to be coughed up and...

Wow, I have heard that Mucinex dries up the mucus in the lungs and other areas of the body and it isn't able to get out so it clogs the airways and sinuses, etc. That is why they prescribe hypertonic saline or Pulmozyme, because those meds moisten the mucus and allow it to be coughed up and...

Hi, How much do you give your daughter and where do you buy the product? Do you bake with it or just give it as milk and supplements? Thanks

Hi, How much do you give your daughter and where do you buy the product? Do you bake with it or just give it as milk and supplements? Thanks

Hi, <br /> <br />How much do you give your daughter and where do you buy the product? Do you bake with it or just give it as milk and supplements? Thanks

Hi, How much do you give your daughter and where do you buy the product? Do you bake with it or just give it as milk and supplements? Thanks