Cystic Fibrosis Forum (EXP)

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Recent content by camperscove

  1. C

    Zenpep Inconsistency

    Interesting!! I'm going to start counting beads for sure! Our son was doing great on Ultrase but then had to switch (thanks FDA) to ZenPep. Tummy aches have definitely increased and poops have not been as consistent and dosage really had to be increased. He has clinic on Wednesday so we'll...
  2. C

    Zenpep Inconsistency

    Interesting!! I'm going to start counting beads for sure! Our son was doing great on Ultrase but then had to switch (thanks FDA) to ZenPep. Tummy aches have definitely increased and poops have not been as consistent and dosage really had to be increased. He has clinic on Wednesday so we'll...
  3. C

    Zenpep Inconsistency

    Interesting!! I'm going to start counting beads for sure! Our son was doing great on Ultrase but then had to switch (thanks FDA) to ZenPep. Tummy aches have definitely increased and poops have not been as consistent and dosage really had to be increased. He has clinic on Wednesday so we'll...
  4. C

    lots of financial ?'s please help!

    Our son does not qualify for SSI because he's on TEFRA which is a Medicaid program in Alaska. In order to qualify for TEFRA, you have to apply and have "proof", basically all of his medical information, sent before a review board who then "certifies" that your diagnosis is a medical disability...
  5. C

    lots of financial ?'s please help!

    Our son does not qualify for SSI because he's on TEFRA which is a Medicaid program in Alaska. In order to qualify for TEFRA, you have to apply and have "proof", basically all of his medical information, sent before a review board who then "certifies" that your diagnosis is a medical disability...
  6. C

    lots of financial ?'s please help!

    Our son does not qualify for SSI because he's on TEFRA which is a Medicaid program in Alaska. In order to qualify for TEFRA, you have to apply and have "proof", basically all of his medical information, sent before a review board who then "certifies" that your diagnosis is a medical disability...
  7. C

    Self-Responsibility

    Ratatosk, I love the "bluey" med! Everything at our house is: Super Yucky White med, Kind of Yucky pink, orange puffer, blue puffer, etc, And amazingly, his team always knows exactly what he's talking about. Probably because every kid feels the same :-) In that recent US News & World Report...
  8. C

    Self-Responsibility

    Ratatosk, I love the "bluey" med! Everything at our house is: Super Yucky White med, Kind of Yucky pink, orange puffer, blue puffer, etc, And amazingly, his team always knows exactly what he's talking about. Probably because every kid feels the same :-) In that recent US News & World Report...
  9. C

    Self-Responsibility

    Ratatosk, I love the "bluey" med! Everything at our house is: Super Yucky White med, Kind of Yucky pink, orange puffer, blue puffer, etc, And amazingly, his team always knows exactly what he's talking about. Probably because every kid feels the same :-) <br />In that recent US News & World...
  10. C

    ABPA - allergic reaction to aspergillus (in a nutshell!)

    As it turns out, my sons IgE was only barely elevated. . . 2 steps forward, 1 step back in our quest to get rid of this lingering cough. I'm so glad to have stumbled on all of this ABPA info because now it's on my radar especially since it's more common in boys! Very interested in Sporonox...
  11. C

    ABPA - allergic reaction to aspergillus (in a nutshell!)

    As it turns out, my sons IgE was only barely elevated. . . 2 steps forward, 1 step back in our quest to get rid of this lingering cough. I'm so glad to have stumbled on all of this ABPA info because now it's on my radar especially since it's more common in boys! Very interested in Sporonox...
  12. C

    ABPA - allergic reaction to aspergillus (in a nutshell!)

    As it turns out, my sons IgE was only barely elevated. . . 2 steps forward, 1 step back in our quest to get rid of this lingering cough. I'm so glad to have stumbled on all of this ABPA info because now it's on my radar especially since it's more common in boys! <br />Very interested in...
  13. C

    ABPA - allergic reaction to aspergillus (in a nutshell!)

    Tonya, when Andrew is having a flare up, how do you generally treat it? And do you recall the process/tests he went through to dx the ABPA?
  14. C

    ABPA - allergic reaction to aspergillus (in a nutshell!)

    Tonya, when Andrew is having a flare up, how do you generally treat it? And do you recall the process/tests he went through to dx the ABPA?
  15. C

    ABPA - allergic reaction to aspergillus (in a nutshell!)

    Tonya, when Andrew is having a flare up, how do you generally treat it? And do you recall the process/tests he went through to dx the ABPA?
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