Cystic Fibrosis Forum (EXP)

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Recent content by CFCure

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    600 years’ supply of cystic fibrosis drug destroyed in price row

    Research = Hope Research Costs Money Hope is Not Free I think we are forgetting one thing - without Vertex and surfing (hypertonic saline discovery), there have only been minimal advancements in treatments in CF since the DF508 gene was discovered back in 1989! 30-year anniversary...
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    Best & Unique Practices for CF Individuals

    Best CF Practice - Sleeping Without Off-Gassing and Without VOCs (Tip#9) I want to add an additional helpful hint (#9) since I just completed wayyyyyyyy too much research to find the best possible mattress. I am probably a bit OCD ;) Background: I was looking for a bed that would be ideal for...
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    Best & Unique Practices for CF Individuals

    Hi Fellow CFers, Hope everyone is having a wonderful fourth of July weekend! I've wanted to start this thread on best practices for a long time as I'm hoping to contribute my experiences to a group that has helped me tremendously over the years. Given I've been living with CF for nearly 40...
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