Recent content by cfgirl38

who are you in a nut shell My name is Becky. I'm 38. Diagnosed at age 30. Been on here for a few years on and off. average weight. do not have failure to thrive. Lungs are 38%. O2 at night. Had to stop working 4 yrs ago. Have dog, Bailey Cat Sam. The cat and I have the same birthday...

who are you in a nut shell My name is Becky I'm 38 I live in Mich. I was dx at age 30. My weight is 180. I am 5'9" Yes it seems I dont have the weight issues most cf'ers do. I did in my 20's. My pfts are 42% We have chosen not to have children. I have been with my boyfriend for 17yrs. Yes...

Hi everyone I havent been on in forever. But now suffer from the same as Joe is speaking of. I dont have as much of the osilopsia as I first did. I had to go to a vestibular rehab class. I do know now that this is caused from years of Tobi and one Iv of gentamycin. They are from the same family...

Hi everyone I havent been on in forever. But now suffer from the same as Joe is speaking of. I dont have as much of the osilopsia as I first did. I had to go to a vestibular rehab class. I do know now that this is caused from years of Tobi and one Iv of gentamycin. They are from the same family...

Hi everyone I havent been on in forever. But now suffer from the same as Joe is speaking of. I dont have as much of the osilopsia as I first did. I had to go to a vestibular rehab class. I do know now that this is caused from years of Tobi and one Iv of gentamycin. They are from the same family...

Hi everyone I havent been on in forever. But now suffer from the same as Joe is speaking of. I dont have as much of the osilopsia as I first did. I had to go to a vestibular rehab class. I do know now that this is caused from years of Tobi and one Iv of gentamycin. They are from the same family...

Hi everyone I havent been on in forever. But now suffer from the same as Joe is speaking of. I dont have as much of the osilopsia as I first did. I had to go to a vestibular rehab class. I do know now that this is caused from years of Tobi and one Iv of gentamycin. They are from the same family...

I am on O2. I have a concentrator and a small tank called a spirit. Melissa have you tried putting the concentrator in another room? That's what I do. I have a 50ft O2 hose. The spirit tank has a continuouse flow on it. So when I'm somewhere where it's quiet I can put it on that setting as to...

Bahamas sound GREAT! As I look out the windw at 35degrees, Rainy, evening. <img src="i/expressions/sun.gif" border="0">

Thanks everyone. Youve been a big help with all my questions. Hopefully my O2 just needs adjusted. I really don't want another noisy peice of equipment. But I'll take it if it makes me feel better longer. I do get tired during the day, and have very vivid dreams but no nightmares. My dreams are...

I do hope your all feeling a bit better today. I know how hard it is to think about having fun when you feel so bad. I know for me I have a hard time because I lost my step dad (whom is the only dad I knew) he loved the holidays. After he passed none of my family wants to get together. It's been...

Definately the image made me giggle. But it just shows your strength. Congrats!!<img src="i/expressions/face-icon-small-happy.gif" border="0">

When you had your sleep study did you have to spend the night or was in 1/2 the night or what? Is there other symptoms of high CO2? I don't seem to get headaches. I'm currently on O2 at night but havent been sleeping very well lately. So the cf doc wants me to go to a sleep study. I was also...

Blah, blah, blah.... You obviously care. Your having a fit about it. <img src="i/expressions/face-icon-small-happy.gif" border="0">

My boyfriend and I are homeowners. We are not married nor plan on it as his health insurance is nothing for a cf'er. So we really cant. But we did the next big step, own a home 4yrs ago. I was also working and in better health back then. Since then I have had to go on disability last yr. So it...