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I had this surgery done last year. Good news is 1 year later my sinuses are still open and draining. Less headaches and less pressure.
The down side is it was quite painful for me. Because they are drilling into the bone it hurts like you have a "broken" bone. It will get better but is a slow...
From someone with CF, I grew up with cats, my mom was allergic to dogs. I am not going to tell you how you feel about germs and I am not going to criticize by any means. I am 34, about to be 35, I am not a germaphobe. It is a good thing because I could not work in the hospital working as a nurse...
Oh and yes, I have gone to counseling at different times/struggles in life including with my husband who is a nurse and understands a lot about CF but we still have moments he just doesn't get it.
Everyone has brought up a lot if good advice. My first instinct is to get a counselor, talk to the cf social worker even if it feels awkward. You need to take care of yourself physically and emotionally. Who cares what others think about counseling. It is about you taking care of you. See a...
Yes, I know of a few on the Facebook private group called "cystic fibrosis mummies". Search it on Facebook. Once you get approved or invited to join you can talk/ask about anything CF and pregnancy related. I found it to be priceless and more informative and supportive than the doctors. Good...
It's not necessarily going to help you lose weight having better blood sugar levels. Instead having better blood sugar levels will prevent cellular damage and organ failure. Do you mean you got a glucometer to test your blood sugar levels? When did you get the reading of 179 in the morning...
Pinter,
I see you speak very highly of the doctors in mass. Obviously you live out that way but in your experience what makes them better than other doctors or has this been the only place you have had treatment for your cf issues? I ask out of curiosity not as an accusation or anything. I...
There is a nebulizer made specifically for the sinuses called the SinuStar nasal delivery system made specifically to deliver medication to the sinuses with nasal prongs instead of wearing a mask and breathing in through your nose. I was wondering if anyone has heard or used this for antibiotics...
I am an RN and the taper sounds fine, you should not be having any withdrawal. Based on my experience, I have a few questions. What is your baseline blood pressure and have you been drinking lots of fluids? If so has it been water other fluids? Usually if I don't drink enough I get a headache...
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