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Recent content by chezza

  1. C

    Kalydeco users help needed

    All Kalydeco users please please please complete this short survey! <a href="http://www.surveymonkey.com/s/RNNC8HN" target="_blank">http://www.surveymonkey.com/s/RNNC8HN</a> It is strictly only for the use of CF Patient Interest Groups and the results will not be shared with any...
  2. C

    Kalydeco & low lung function.

    Thank youLauren & Emilyfor your valued replies, I wish our NHS system would hurry up & pass this drug for us to use. So fustrating when you know how much it has been helping other people. Emily, how has you husband been on the drug, hopefully he is improving daily. So wish we had taken the...
  3. C

    Kalydeco & low lung function.

    Thank youLauren & Emilyfor your valued replies, I wish our NHS system would hurry up & pass this drug for us to use. So fustrating when you know how much it has been helping other people. Emily, how has you husband been on the drug, hopefully he is improving daily. So wish we had taken the...
  4. C

    Email address for Vertex

    Hi, I am from the uk and the uk Vertex office, they would not talk to me and justgave me an email addres of BOS1/Vrtx.com, I have never seen an email address like that before, and have googled it, and I'm not sure if it is the correct one. I am unable to see a contact email address onVertex's...
  5. C

    Email address for Vertex

    Hi, I am from the uk and the uk Vertex office, they would not talk to me and justgave me an email addres of BOS1/Vrtx.com, I have never seen an email address like that before, and have googled it, and I'm not sure if it is the correct one. I am unable to see a contact email address onVertex's...
  6. C

    Kalydeco & low lung function.

    Hi I am fromthe uk and as yet we do not have this wonder drug, my lung function varies from 25% to 30% depending on weather it is my Cayston month on. My doctor can not tell me if people with low lunction like mine will be offered Kalydeco or if it will just be offered to well cfs. I have been...
  7. C

    Kalydeco & low lung function.

    Hi I am fromthe uk and as yet we do not have this wonder drug, my lung function varies from 25% to 30% depending on weather it is my Cayston month on. My doctor can not tell me if people with low lunction like mine will be offered Kalydeco or if it will just be offered to well cfs. I have been...
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