Recent content by Chilemom

Hello everyone... long time ... but still here. With my familie we are planning going to New York, but know we are planning going close to Wesrchester Hospital that have a cf center. does any one goes there?? i need to contact a doctor or someone from the cf center. thank you

Chris do you know if not US Citizen can take a health insurance, in other words, can I put my daughter in a Insurance in the United States even thou she is not an american girl? thank you Francisca

L Lauren Ivonne is friend of mine. She is talking about my daughter (and the chance that maybe someone else has the mutation but havent done any genetict test). With her and other parents we are starting a foundation in Chile. actually i ask her to write it (she is a fun of facebook)...

she is perect, an d I can see she is latin so she must speak spanish. I will defenitly call her on monday. thank you

thank you stephen and 4hats. i thought that the columbia hospital was a good decision because i have read how involved they are in investigation, but maybe the beth israel hospital is also involved. my daughter is 6 (well she will turn six in New York!!!!). so i am looking for a pediatrician...

Hi everyone.. long time with out writting, but still checking the forums every single day. i have the chance to go to New York with my daughter.. HURRA¡¡¡ (remember I am from Chile, South America) at the end of October. So I have a lot of questions, but the most important if you know any CF...

thanks to all the people that get involved in the clinical trials (Lauren, Dajsmom, etc), Vertex and CFF. this is huge, this is great, and above all my good feelings i am so grateful... we should have more details soon, but what we do know is that today we are much better than yesterday. bravo!!!!

thanks to all the people that get involved in the clinical trials (Lauren, Dajsmom, etc), Vertex and CFF. this is huge, this is great, and above all my good feelings i am so grateful... we should have more details soon, but what we do know is that today we are much better than yesterday. bravo!!!!

<P>Lauren great video, Isaac is lovely.  thank you for all your help, you know that I am to far away to be part of the trial ( i have write to Vertex and call them but they said that my daughter is to far to do the trial) so thank you for help my daughter and all the others daughters and sons of...

<P>Lauren great video,Isaac is lovely. thank you for all your help, you know thatI am to far away to be part of the trial ( i have write to Vertex and call them but they said that my daughter is to far to dothe trial) so thank you for help my daughter and all the others daughters and sons of...

<P><BR>Lauren great video,Isaac is lovely. thank you for all your help, you know thatI am to far away to be part of the trial ( i have write to Vertex and call them but they said that my daughter is to far to dothe trial) so thank you for help my daughter and all the others daughters and sons of...

<P>hola, yo tambien estoy en santiago de chile.</P> <P>Mi hija tiene 4 años (casi 5) va al colegio y esta muy bien.</P> <P>Siempre me emto a leer la pagina, pero hace tiempo que no me conectaba y no habia visto que me habian escrito un email avisandome de ti.</P> <P>ojala me escribas para que...

<P>hola, yo tambien estoy en santiago de chile.</P> <P>Mi hija tiene 4 años (casi 5) va al colegio y esta muy bien.</P> <P>Siempre me emto a leer la pagina, pero hace tiempo que no me conectaba y no habia visto que me habian escrito un email avisandome de ti.</P> <P>ojala me escribas para que...

<P><BR>hola, yo tambien estoy en santiago de chile.</P> <P>Mi hija tiene 4 años (casi 5) va al colegio y esta muy bien.</P> <P>Siempre me emto a leer la pagina, pero hace tiempo que no me conectaba y no habia visto que me habian escrito un email avisandome de ti.</P> <P>ojala me escribas para...

hy,... long time without writing, but always reading all the good topics that here are. my daughter is four and a half, i think that she is starting to realized that not all kids take creon, or do cpt every day, and all the cf issues. in my house we speak about Cf in an open way, but i think is...