Recent content by chloe

Hello Allans Girl... I know that this must be a very difficult time for you... A time of reflecting...of the good times...and the bittersweet... I just wanted you to know that I...along with many others...are thinking about you today...and praying for you too!! You and Allan have been an...

HAPPY THANKSGIVING TO EVERYONE... I Just want to take this opportunity to thank all of you...for you help and support these past months!! I had so many questions...and sometimes frustration...with my loved one...not knowing how to support them...especially when I saw them making choices that...

Dear Jennifer... I'm so sad to hear about what is happening because of the steroids!!!! I know that there are always side-effects...from the medication that we have to take!! I hate that it's true...but...it is!!!! You are a very brave woman...and I admire you...and how your faith in God...

Hello again... Thanks for your response...and for the information. I checked it out...and found that there is "port" called a polysite catheter! Actually...I was so happy to to find this out! I think that if you read the responses...people were not wanting to "judge"...but...were concerned...

Hello everyone... I read this last night...after reading several other posts that really didn't make sense to me. I also tried to find out what this was on the web...and all I could find was that it was a type of material used to make fence. ..nothing at all having to do with cf. So...to...

Hello...it's me again... I was just spending some time browsing...and now am starting to feel like I am becoming paranoid!! Seriously...I'm feeling a little uneasy... I looked at the site for families...and also teens and young adults. I found several other threads that sounded very similar...

Hello everyone... I have to say...when I read both of those threads...I found them a "little hard to believe"! I felt somewhat guilty for feeling that way...but...they just didn't sound real to me! Just in case they are real...I don't want to say anything negative. Actually...the way I was...

I think this is a really interesting question...and...as you can see...is getting some pretty funny stories!! My family member has cf...and she tries to hold in her cough all of the time! I really notice it when we are driving in the car! She kind of tenses up...clamps her lips together real...

Hello JennifersHope... I think these are really good questions. Personally...I want my family and loved ones to be open and honest about how they are feeling. I can usually tell anyway...so it helps to hear them tell me how they are feeling...both physically and emotionally. I do understand...

So sorry to hear that you are in the hospital!! I know that it's not fun...and being away from your little one makes it so much more difficult. I just wanted to tell you that I think your attitude is GREAT!! Staying positive...is such an important thing...and goes a long way to help us get...

I just wanted to join in the celebration of the " birthday" for your new lungs!! I am so thankful that you are doing well...and are enjoying life with your friends and family!! Your thoughts about the person and family that made this possible...touched my heart!! My prayers go out to...

Hello JennifersHope...what a great name!! I hope that you are feeling a bit better...I know that sometimes when we vent...it just helps!! That's one of the things that I feel is so great about this site. It's a place where we can be real...and share our hearts with people who are going...

Hello Jess...I just wanted to let you know that I joined in the honoring of Allan tonight...and said a prayer for you too! I will continue to keep you in my prayers! Peace...Hope and Love...Chloe

Dear Jessica...As I have been thinking of a way to bring some kind of comfort to you...I sat down and began to pour out my thoughts...about Allan...about you... I don't pretend to be a writer...or a poet...but my heart is so full...that I wanted to share this with you... There was a man... so...

I think that's a wonderful idea!! I will light a candle at 8pm. est...and say a prayer for Jessica and Allan's family. Chloe