Cystic Fibrosis Forum (EXP)

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Recent content by choco_queen

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    D508 and E92K. Is there any chance Orkambi will help?

    I will keep fighting, I have the best reason in the world to fight - my son. I was assessed for transplant and told I was too well for the moment, I really would like to leave that as the absolute last resort. If they found a way to stop any further decline, I would happily live in the current...
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    D508 and E92K. Is there any chance Orkambi will help?

    Hi Aboveall, Thanks for your reply. I am struggling to understand all this scientific speak and got a bit excited when I finally found an article talking about VX809 and my mutations. I admit I still don't fully understand what they are trying to say! I will have a look at Cystagon and the...
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    D508 and E92K. Is there any chance Orkambi will help?

    Hi, i'm new to the forum but I've been lurking for years. I am 35 with CF and I have an 8 year old boy. My health has been very slowly declining over the years, FEV1 never went over 40% after I had my son ( I was at 55% when became pregnant), I am currently sitting between 22%-32%. I have tried...
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