This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!
Brian, I felt the same way toward the end of those 2 1/2 weeks.. absolutely no energy and super weak. I had been trying to work at home (I'm a computer programmer) throughout all of that and I was so out of it, I was confused and unfocused and ended up taking time off. I will say though that...
My FEV1 is low but pretty stable at about 28%. I've undergone transplant evaluation but it's not necessary yet.. I am 30 years old, still work full time, don't require oxygen except during bad exacerbations, and can generally function pretty independently!
wes2112, I am about to start week 5 of Orkambi and I, too, had a very hard time the first 2 1/2 weeks. Every day (even every hour) was different, each throwing a different side effect my way.. chest tightness, shortness of breath, fever, chills, hot flashes, nausea, stomach issues, extreme...
This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
By continuing to use this site, you are consenting to our use of cookies.