Cystic Fibrosis Forum (EXP)

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Recent content by ClassyMike

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    Pulmno in Chicago?

    i've been going to the u of c for almost 25 years, i enjoy it very much. i see dr. edward naureckas, if you would like to get any other info feel free to PM me.
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    Marriage

    you don't mind me asking but what state has the 7% percent program?
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    vertex submitted its application today for double f508del to the FDA and EU

    http://www.cff.org/aboutCFFoundation/NewsEvents/2014NewsArchive/11-5-Vertex-Submits-Combination-Drug-Application.cfm This is the first time i've been excited in a long time! i know it's still a ways to go, but very cool.
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    Delta F508 & G542X

    I guess i fall in that 3% than too , totally feel free to pm if you got any questions.
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    Co-pay assistance for cayston

    Thanks guys, I'm going to follow up with the suggestions. I really enjoy hearing the advice each of you have picked up along the way.
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    Co-pay assistance for cayston

    what were your experience with this, did it bring your copay to a reasonable level? im in a little sticker shock , what was a 25 dollar bill in 2010 is now a $353 bill. http://www.gilead.com/responsibility/us-patient-access/cayston%20access%20program
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    PharmaNac and Clear Lungs

    Thanks, i saw that it was pretty expensive. how effective has it been for users of it?
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    PharmaNac and Clear Lungs

    ive been ready up on both of this two, and i know that many people use pharma nac, has anybody had positive experience with the clear lungs product? just curious, any feed back would be great. Thanks!
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    Delta F508 and G542X

    this are my mutations , sorry for your loss Julie.
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    Do scientists know when there is gonna be a cure? Is 1/2 the cure out?

    liprotamase is the name of a enzyme that Eli Lilly has in its pipeline. it would be pretty awesome to only have to a take a single pill. does anybody else remember taking your enzyme in powder form?
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    New Wearable Airway Clearance Device

    looks cool, i would like to see a video of it in action.
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    NAC taste

    That's a pretty cool blog. You have a ton of other interesting stuff on there. Thank You
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    NAC taste

    PharmaNAC is a supplement that is supposed to address inflammation, right? it sounds interesting, do a lot of the people on this site take it? what's have been your feeling towards the its results?
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    Anyone heard of this study?

    Sounds real scary (aids and the black plague)
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    Anyone heard of this study?

    Sounds real scary (aids and the black plague)
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