Cystic Fibrosis Forum (EXP)

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Recent content by colred42

  1. C

    What to do between rounds of tobi?

    I use cayston and tobi. Three weeks of tobi and 4 weeks of cayston. I use to do tobi for a month, casyton for a month, but that last week of tobi i feel crappy. I used colisitin a couple of years about but i think it stopped working for me or stopped working as good as it use too. On a note...
  2. C

    What to do between rounds of tobi?

    I use cayston and tobi. Three weeks of tobi and 4 weeks of cayston. I use to do tobi for a month, casyton for a month, but that last week of tobi i feel crappy. I used colisitin a couple of years about but i think it stopped working for me or stopped working as good as it use too. On a note...
  3. C

    arm vs chest port

    I have had my chest port - right upper chest - for 14 years. I'm not sure if i had a really good doctor place it or i'm just that super anal about mine. Being a girl helps hide the port - put a bra on and its good to go. No one notices it unless i'm not wearing a bra. It's super easy to access...
  4. C

    arm vs chest port

    I have had my chest port - right upper chest - for 14 years. I'm not sure if i had a really good doctor place it or i'm just that super anal about mine. Being a girl helps hide the port - put a bra on and its good to go. No one notices it unless i'm not wearing a bra. It's super easy to access...
  5. C

    Marriage and CF

    I was always told, if you have an unofficial ceremony and you are on state help, if the state found out you would be responsible for your medical care retroactively. I believe there was this couple who do the ceremony and then had to pay the state back for two years of medical care. Beth was...
  6. C

    Marriage and CF

    I was always told, if you have an unofficial ceremony and you are on state help, if the state found out you would be responsible for your medical care retroactively. I believe there was this couple who do the ceremony and then had to pay the state back for two years of medical care. Beth was...
  7. C

    What is your FEV1 Score?

    My FEV1 is in the low 50% when I'm feel good and probably high 40% when it's time for a tune up, aka. IV meds.
  8. C

    What is your FEV1 Score?

    My FEV1 is in the low 50% when I'm feel good and probably high 40% when it's time for a tune up, aka. IV meds.
  9. C

    What is your FEV1 Score?

    My FEV1 is in the low 50% when I'm feel good and probably high 40% when it's time for a tune up, aka. IV meds.
  10. C

    Does anyone have AFLAC

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  11. C

    Does anyone have AFLAC

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  12. C

    Does anyone have AFLAC

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  13. C

    Does anyone have AFLAC

    I just purchased the Critical Care plan with my employer (Florida). All I had to do was answer 5 questions (e.g., do you have diabetes, high blood pressure) and if you could answer no to those questions you were eligible. The plan covers 5 specific issues, organ transplants being one of them...
  14. C

    Does anyone have AFLAC

    I just purchased the Critical Care plan with my employer (Florida). All I had to do was answer 5 questions (e.g., do you have diabetes, high blood pressure) and if you could answer no to those questions you were eligible. The plan covers 5 specific issues, organ transplants being one of them...
  15. C

    Does anyone have AFLAC

    I just purchased the Critical Care plan with my employer (Florida). All I had to do was answer 5 questions (e.g., do you have diabetes, high blood pressure) and if you could answer no to those questions you were eligible. The plan covers 5 specific issues, organ transplants being one of them...
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