Cystic Fibrosis Forum (EXP)

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Recent content by conash

  1. C

    kidney cysts

    Hi I was wondering if anyone has kidney cysts. My 16yr daughter started passing blood when she was in for tune-up Timentin/Tobra. Nobody seemed worried about it - though it was present everytime they did urine test. Then 1.5 wks out of hospital more bleeding. I requested an ultrasound and we...
  2. C

    kidney cysts

    Hi I was wondering if anyone has kidney cysts. My 16yr daughter started passing blood when she was in for tune-up Timentin/Tobra. Nobody seemed worried about it - though it was present everytime they did urine test. Then 1.5 wks out of hospital more bleeding. I requested an ultrasound and we...
  3. C

    kidney cysts

    Hi I was wondering if anyone has kidney cysts. My 16yr daughter started passing blood when she was in for tune-up Timentin/Tobra. Nobody seemed worried about it - though it was present everytime they did urine test. Then 1.5 wks out of hospital more bleeding. I requested an ultrasound and we...
  4. C

    kidney cysts

    Hi I was wondering if anyone has kidney cysts. My 16yr daughter started passing blood when she was in for tune-up Timentin/Tobra. Nobody seemed worried about it - though it was present everytime they did urine test. Then 1.5 wks out of hospital more bleeding. I requested an ultrasound and we...
  5. C

    kidney cysts

    Hi I was wondering if anyone has kidney cysts. My 16yr daughter started passing blood when she was in for tune-up Timentin/Tobra. Nobody seemed worried about it - though it was present everytime they did urine test. Then 1.5 wks out of hospital more bleeding. I requested an ultrasound and we...
  6. C

    Daughter stopped taking creon

    My 15yr daughter has stopped taking her creon and I dont know how to get the message accross that she needs to take them. What problems is she facing if she continues. She has told me she just wants to be normal & it is killing me because there is nothing I can say to make her feel different...
  7. C

    Daughter stopped taking creon

    My 15yr daughter has stopped taking her creon and I dont know how to get the message accross that she needs to take them. What problems is she facing if she continues. She has told me she just wants to be normal & it is killing me because there is nothing I can say to make her feel different...
  8. C

    Daughter stopped taking creon

    My 15yr daughter has stopped taking her creon and I dont know how to get the message accross that she needs to take them. What problems is she facing if she continues. She has told me she just wants to be normal & it is killing me because there is nothing I can say to make her feel different...
  9. C

    Daughter stopped taking creon

    My 15yr daughter has stopped taking her creon and I dont know how to get the message accross that she needs to take them. What problems is she facing if she continues. She has told me she just wants to be normal & it is killing me because there is nothing I can say to make her feel different...
  10. C

    Daughter stopped taking creon

    My 15yr daughter has stopped taking her creon and I dont know how to get the message accross that she needs to take them. What problems is she facing if she continues. <br />She has told me she just wants to be normal & it is killing me because there is nothing I can say to make her feel...
  11. C

    help with Ports & I V antibiotics & Vest

    I was wondering if anyone could tell me if they have a Port under their arm/bra line and how they cope with doing therapy when they have IV's going thru. My daughter is in Hosptial at the moment and finds that the vest hurts her as it pushes on the needle. In Australia we tend to put the ports...
  12. C

    help with Ports & I V antibiotics & Vest

    I was wondering if anyone could tell me if they have a Port under their arm/bra line and how they cope with doing therapy when they have IV's going thru. My daughter is in Hosptial at the moment and finds that the vest hurts her as it pushes on the needle. In Australia we tend to put the ports...
  13. C

    help with Ports & I V antibiotics & Vest

    I was wondering if anyone could tell me if they have a Port under their arm/bra line and how they cope with doing therapy when they have IV's going thru. My daughter is in Hosptial at the moment and finds that the vest hurts her as it pushes on the needle. In Australia we tend to put the ports...
  14. C

    help with Ports & I V antibiotics & Vest

    I was wondering if anyone could tell me if they have a Port under their arm/bra line and how they cope with doing therapy when they have IV's going thru. My daughter is in Hosptial at the moment and finds that the vest hurts her as it pushes on the needle. In Australia we tend to put the ports...
  15. C

    help with Ports & I V antibiotics & Vest

    I was wondering if anyone could tell me if they have a Port under their arm/bra line and how they cope with doing therapy when they have IV's going thru. My daughter is in Hosptial at the moment and finds that the vest hurts her as it pushes on the needle. In Australia we tend to put the ports...
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