Cystic Fibrosis Forum (EXP)

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Recent content by crazycurly92

  1. C

    feel like you've been beaten up every morning?

    Hey all! Hope everyone is doing well, does anyone ever feel like they have literally been beaten in their sleep when they wake up every morning? my ribs are always so sore and I don't know what exactly causes this.. does anyone else have similar pain? maybe its costochondritis but the pain i...
  2. C

    feel like you've been beaten up every morning?

    Hey all! Hope everyone is doing well, does anyone ever feel like they have literally been beaten in their sleep when they wake up every morning? my ribs are always so sore and I don't know what exactly causes this.. does anyone else have similar pain? maybe its costochondritis but the pain i...
  3. C

    feel like you've been beaten up every morning?

    Hey all! Hope everyone is doing well, does anyone ever feel like they have literally been beaten in their sleep when they wake up every morning? my ribs are always so sore and I don't know what exactly causes this.. does anyone else have similar pain? maybe its costochondritis but the pain i...
  4. C

    Fatigue

    Wish I could help but I feel this way too. Im a teenager and everyone that I know wants to go out on the weekends and all i ever wanna do is sleep. 9:00 is my enforced bed time (enforced by myself haha) if I stay up later than that I can't function the next day. My mom has noticed lately how...
  5. C

    Fatigue

    Wish I could help but I feel this way too. Im a teenager and everyone that I know wants to go out on the weekends and all i ever wanna do is sleep. 9:00 is my enforced bed time (enforced by myself haha) if I stay up later than that I can't function the next day. My mom has noticed lately how...
  6. C

    Fatigue

    Wish I could help but I feel this way too. Im a teenager and everyone that I know wants to go out on the weekends and all i ever wanna do is sleep. 9:00 is my enforced bed time (enforced by myself haha) if I stay up later than that I can't function the next day. My mom has noticed lately how...
  7. C

    Good ENT in Dallas (DFW) Area?

    I just PMed you!!
  8. C

    Good ENT in Dallas (DFW) Area?

    I just PMed you!!
  9. C

    Good ENT in Dallas (DFW) Area?

    I just PMed you!!
  10. C

    Good ENT in Dallas (DFW) Area?

    Omg you just described my situation to the tee. I also live in the Dallas area and go to Medical City over on Forest (off of Central). I have been looking for a good ENT all my life. They don't understand that we need frequent sinus rinses and surgeries to make sure that our lungs are kept in...
  11. C

    Good ENT in Dallas (DFW) Area?

    Omg you just described my situation to the tee. I also live in the Dallas area and go to Medical City over on Forest (off of Central). I have been looking for a good ENT all my life. They don't understand that we need frequent sinus rinses and surgeries to make sure that our lungs are kept in...
  12. C

    Good ENT in Dallas (DFW) Area?

    Omg you just described my situation to the tee. I also live in the Dallas area and go to Medical City over on Forest (off of Central). I have been looking for a good ENT all my life. They don't understand that we need frequent sinus rinses and surgeries to make sure that our lungs are kept in...
  13. C

    Two lobes clogged with mucus...docs don't know why? Anyone else have this?

    Bronchoscopys are tricky procedures. Ive had so many i cant count any more but some have resulted in extensive bleeding and bringing infections into my lungs. Sometimes they hurt more than help but I would definitely up her treatments, do as many as you can a day. If they hospitalize her that is...
  14. C

    Two lobes clogged with mucus...docs don't know why? Anyone else have this?

    Bronchoscopys are tricky procedures. Ive had so many i cant count any more but some have resulted in extensive bleeding and bringing infections into my lungs. Sometimes they hurt more than help but I would definitely up her treatments, do as many as you can a day. If they hospitalize her that is...
  15. C

    Two lobes clogged with mucus...docs don't know why? Anyone else have this?

    Bronchoscopys are tricky procedures. Ive had so many i cant count any more but some have resulted in extensive bleeding and bringing infections into my lungs. Sometimes they hurt more than help but I would definitely up her treatments, do as many as you can a day. If they hospitalize her that is...
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