Recent content by CysticlyFIT

Hi everyone, Well, I got diagnosed withmycobacterium a. complex about a month ago and started treatment for it only 9 days ago... I got the drug cocktail of mycobutin, ethambutol, and clarithromycin, Everything was going actaully well, my cough was getting better, feeling a little better...

Hi everyone, Well, I got diagnosed withmycobacterium a. complex about a month ago and started treatment for it only 9 days ago... I got the drug cocktail of mycobutin, ethambutol, and clarithromycin, Everything was going actaully well, my cough was getting better, feeling a little better...

Hi, I'm very sad to say a great CF doc passed away on friday, (Jan 20, 2012) Dr. Morton Schwartzman, he worked at the Joe Dimaggio CF center in Hollywood Florida since 1993 since the CF center first opened, -which is the one I go to, & not sure if anyone on these forms have been there or knew...

Hi, I'm very sad to say a great CF doc passed away on friday, (Jan 20, 2012) Dr. Morton Schwartzman, he worked at the Joe Dimaggio CF center in Hollywood Florida since 1993 since the CF center first opened, -which is the one I go to, & not sure if anyone on these forms have been there or knew...

Originally posted by: albino15 Right On littlemisssilly. umm, CF is a disease, that was a strange comment. -I don't think its strange comment, as I don't consider MY CF a diease-PER SAY, disease has a very badconnotation & ring to to it, esp when people don't understand, - black plague was a...

Originally posted by: TheAmazingBD I was adopted at 3 weeks old and I am gracious for my birthmother giving me life but she had no idea she and my birthfather were carriers. I don't think it is right to spread a disease we Cfers spend our lives fighting. This chat board is proof that CF is not...

Originally posted by: TheAmazingBD I have to post again because this topic infuriates me! HOW CAN ANYONE WHO KNOWS THEY CARRY THE GENE OR HAS CF WILLINGLY BRING A BABY INTO THE WORLD LIKE IT'S OK???? YOU ARE PUNISHING THAT CHILD TO A LIFE OF STRUGGLE!!! YOU HAVE NO FREAKING IDEA WHAT IT FEELS...

Hi there!!!! I can very well understand your frustration to your situation, -esp when you have some much going in your life as you say,- tests, school and maybe part time work ect.,I always seem to need to go in when i'm at the top of my game, or really busy with something and things are going...

Hi there!!!! I can very well understand your frustration to your situation, -esp when you have some much going in your life as you say,- tests, school and maybe part time work ect.,I always seem to need to go in when i'm at the top of my game, or really busy with something and things are going...

Does any one know what class 1717-1G>A is in? Is it the 'G' class as well? I have that mutation with 508Ddelta, But I can never find any information on and it is never mentioned anywhere at CF conferences, CF research or Vertex. All my Doctor told me was one time " it may work a little bit...

Does any one know what class 1717-1G>A is in? Is it the 'G' class as well? I have that mutation with 508Ddelta, But I can never find any information on and it is never mentioned anywhere at CF conferences, CF research or Vertex. All my Doctor told me was one time " it may work a little bit...

Hi !! <br> <br>I do know how you are feeling,- this is why with CF it is important to get those IV antibiotics every 6 months or when the dr says, -even if we're feeling pretty good .<br> <br>Its not unusual to go in feeling good or 'ok at baseline' and then feel terrible on the antibiotics,. I...

Hi !! <br> <br>I do know how you are feeling,- this is why with CF it is important to get those IV antibiotics every 6 months or when the dr says, -even if we're feeling pretty good .<br> <br>Its not unusual to go in feeling good or 'ok at baseline' and then feel terrible on the antibiotics,. I...

I'm 5'4"myself, my mom is 5'1", and my gran 5'0". My older two sisters are around 5'6"-5'8", and my dad almost 6 ft, my brother is 5'8. I seem to be between my mom, and grandma's height mixed with my dad, -as both my sisters take after my dad in height. I don't think CF affects height...

I'm 5'4"myself, my mom is 5'1", and my gran 5'0". My older two sisters are around 5'6"-5'8", and my dad almost 6 ft, my brother is 5'8. I seem to be between my mom, and grandma's height mixed with my dad, -as both my sisters take after my dad in height. I don't think CF affects height...