Diagnosed at 5, when brother was born (severe case)
Tested 3 times ... once at 5, another at 6 (when I didn't die like they said I would in 1966) and again at 14 when my appendix was taken out.
Lived a full and symptom free life until about 44. Knew I had asthma, but didn't see CF coming on, my symptoms were different, like constant thirst and fatigue. It hit full force when I was 48. Went into hospital for the first time in over 25 years. Was like being diagnosed for the first time.
Since then, have ramped up what I stopped doing because of busy career.... water, juicing, heavy duty workouts.
Instead of the vest I take advanced/intermediate ballet classes. On tough breathing days, I dial it down to beginner level.
Wish I'd known what I know now, and hadn't stopped the water/juicing/ workouts... my lung function would not have declined in my 40's. Came back, last hospital stay was 2008.
Here to share what I know to be true and to give hope!
(for Curtis who is watching from Heaven with all his new-found friends!)
Classical Ballet, animal rescue, art, great movies, farm life and classic rock, to name a few.