Cystic Fibrosis Forum (EXP)

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Recent content by datca1994

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    Mealtime Struggles

    Hi Liza-- You are eating dinner as a family, that is so important! It surprises me to hear that family dinner time is a lost cause in America, and books such as Laurie David's "Family Dinner" (published this month) get so much attention. Reading this forum I can see how much effort is put into...
  2. D

    Mealtime Struggles

    Hi Liza-- You are eating dinner as a family, that is so important! It surprises me to hear that family dinner time is a lost cause in America, and books such as Laurie David's "Family Dinner" (published this month) get so much attention. Reading this forum I can see how much effort is put into...
  3. D

    Mealtime Struggles

    Hi Liza-- <br /> <br />You are eating dinner as a family, that is so important! It surprises me to hear that family dinner time is a lost cause in America, and books such as Laurie David's "Family Dinner" (published this month) get so much attention. Reading this forum I can see how much effort...
  4. D

    What to do about overnight feeds and enzymes....

    My son is 3. I do not know about tube lengths, we use whatever came in the box! I sent you a Private Message with some more detail so please take a look. Regards, April
  5. D

    What to do about overnight feeds and enzymes....

    My son is 3. I do not know about tube lengths, we use whatever came in the box! I sent you a Private Message with some more detail so please take a look. Regards, April
  6. D

    What to do about overnight feeds and enzymes....

    My son is 3. I do not know about tube lengths, we use whatever came in the box! I sent you a Private Message with some more detail so please take a look. <br /> <br />Regards, <br />April
  7. D

    What to do about overnight feeds and enzymes....

    I have been giving my son Creon 6 enzymes through the tube for the past one month. Reason: couldn't wake him up to swallow enzymes at the end of his feed. I mix three spoonfuls of applesauce with very little apple juice. I open three capsules of Creon 6 and pour it into mixture. I collect the...
  8. D

    What to do about overnight feeds and enzymes....

    I have been giving my son Creon 6 enzymes through the tube for the past one month. Reason: couldn't wake him up to swallow enzymes at the end of his feed. I mix three spoonfuls of applesauce with very little apple juice. I open three capsules of Creon 6 and pour it into mixture. I collect the...
  9. D

    What to do about overnight feeds and enzymes....

    I have been giving my son Creon 6 enzymes through the tube for the past one month. Reason: couldn't wake him up to swallow enzymes at the end of his feed. <br /> <br />I mix three spoonfuls of applesauce with very little apple juice. I open three capsules of Creon 6 and pour it into mixture. I...
  10. D

    The vest

    My son is 3 years old and has used the vest since age 2. Recently he has started dong exactly what your daughter does. I adjust the rate and frequency until he tells me it is better. Debated with myself whether to do that or not. But since I want the CPT experience to be a good one, on those...
  11. D

    The vest

    My son is 3 years old and has used the vest since age 2. Recently he has started dong exactly what your daughter does. I adjust the rate and frequency until he tells me it is better. Debated with myself whether to do that or not. But since I want the CPT experience to be a good one, on those...
  12. D

    The vest

    My son is 3 years old and has used the vest since age 2. Recently he has started dong exactly what your daughter does. I adjust the rate and frequency until he tells me it is better. Debated with myself whether to do that or not. But since I want the CPT experience to be a good one, on those...
  13. D

    The vest

    My son is 3 years old and has used the vest since age 2. Recently he has started dong exactly what your daughter does. I adjust the rate and frequency until he tells me it is better. Debated with myself whether to do that or not. But since I want the CPT experience to be a good one, on those...
  14. D

    The vest

    My son is 3 years old and has used the vest since age 2. Recently he has started dong exactly what your daughter does. I adjust the rate and frequency until he tells me it is better. Debated with myself whether to do that or not. But since I want the CPT experience to be a good one, on those...
  15. D

    CF toddler diagnosed with Eosinophilic esophagitis

    My son is 3 years old, weighs 13 kilos and is 94 cm (about 14BMI). Since his infancy we were frustrated with his lack of appetite and knew he was not getting enough calories (about 900 calories per day). We agreed to the G-tube and he had the surgery on October 5 2009. A few days before the...
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