Cystic Fibrosis Forum (EXP)

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Recent content by denise

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    Elephants are dancing in my tummy...

    How cute<img src="i/expressions/face-icon-small-smile.gif" border="0">
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    CLINIC QUESTION

    Our dr only schedules two cf patients a day one in the morning and one in the afternoon. The receptionist has to get an override for my kids to come together. So no one uses a mask. I am sure my children would fight it the whole time if we did use them.
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    Saydee

    Hi, Maybe she responds really quickly to antibiotics. I know my kids do.
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    Just out of curiosity...........

    My son was in for three weeks last summer
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    Just out of curiosity...........

    My son was in for three weeks last summer
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    She Did It!!!!

    I never knew how exciting poop could be until I had Robbie
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    Unhappy baby due to CF?

    You have a wonderful child<img src="i/expressions/face-icon-small-smile.gif" border="0">
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    Unhappy baby due to CF?

    Both of my kids with cf were extremely grouchy. They had not been diagnosed at the time. I think that the enzimes really helped my kids feel better. I think you should ask for more enzimes
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    GETTING TO KNOW EVERYONE

    Hi, I had to argue with the doctor to test my son and then the nurses laughed at me. I was right they were wrong<img src="i/expressions/face-icon-small-sad.gif" border="0"> My husband and I live in sc with our three sons. I teach math at a local university and my husband designs web sites. He...
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    sad

    Hi, I have been feeling so tired and really sad. I am not sure if this is a part of menopause or just a new stage in realizing my kids have cf. Does anyone have any idea what I could do? I feel like I am in a dark hold.
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    social security questions

    I think your child can qualify. You need to call social security. We tried and they said our kids were too healthy. I was told later we should have kept appealing
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    Antibiotics?

    My two year old has been on IV antibiotics for 6 weeks for a cough
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    Pregnant with CF baby and denied special care

    You are in a very hard situation. I know how emotional being pregnant can be. I have had success by continueing to repeat my question to the doctors......Sometimes five or six times. I was laughed at and made fun of by the hospital staff when Iasked for a cf test for my 2 year old. I was...
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    Mother from 6,5 yrs old suspected of having CF...

    Hi, My son was diagnosed at 5. I remember people telling me that if he had cf it would be better and then they would know what to do. My son has thrived on the treatments. Now the doctors always take me seriously when I tell them what is up with him. I like knowing they can do something for...
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    Just paranoid?

    My pediatrition ran the blood test for us to check our other children after the baby was diagnosed. I told him the exact kind of cf my other child had and he ordered the blood test. The Cf doctor did not know our older children so I did not even ask him. I wouldn't even tell the doctor he...
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