Cystic Fibrosis Forum (EXP)

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Recent content by denisemarie

  1. D

    I am looking for information on having F508 & D1152H

    Thank you so much...I will do that!!
  2. D

    I am looking for information on having F508 & D1152H

    Thank you so much...I will do that!!
  3. D

    I am looking for information on having F508 & D1152H

    Thank you so much...I will do that!!
  4. D

    I am looking for information on having F508 & D1152H

    My 4 year old son has CF. His mutations are Delta F508 and D1152H. Although his case is mild he does do a nebulizer and clapping treatment once a day. I can not find any information on having these two mutations. They say its mild, but will it get worse? when will it get worse?? When we...
  5. D

    I am looking for information on having F508 & D1152H

    My 4 year old son has CF. His mutations are Delta F508 and D1152H. Although his case is mild he does do a nebulizer and clapping treatment once a day. I can not find any information on having these two mutations. They say its mild, but will it get worse? when will it get worse?? When we...
  6. D

    I am looking for information on having F508 & D1152H

    My 4 year old son has CF. His mutations are Delta F508 and D1152H. Although his case is mild he does do a nebulizer and clapping treatment once a day. I can not find any information on having these two mutations. They say its mild, but will it get worse? when will it get worse?? When we...
  7. D

    letter to raise money

    I think your letter sounds good too. I am also sending out letters for the Great Stride Walk in Staten Island, NY. My 4 year old son has CF. In my letter, I briefly mentioned about CF and made a second page of the following: (I copied this from a flyer I had) Good luck with your walk...
  8. D

    letter to raise money

    I think your letter sounds good too. I am also sending out letters for the Great Stride Walk in Staten Island, NY. My 4 year old son has CF. In my letter, I briefly mentioned about CF and made a second page of the following: (I copied this from a flyer I had) Good luck with your walk...
  9. D

    letter to raise money

    I think your letter sounds good too. I am also sending out letters for the Great Stride Walk in Staten Island, NY. My 4 year old son has CF. In my letter, I briefly mentioned about CF and made a second page of the following: (I copied this from a flyer I had) Good luck with your walk...
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