Cystic Fibrosis Forum (EXP)

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Recent content by Dizzy16

  1. D

    Pulmozyme Not refrigerated

    Jessica, We just lost power for over 4 days and just our Dr. the same question. They said after 24 hrs that it was no longer good. We are military and they are swapping our meds all out. I just picked up his 3 month supply too. Michele
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    New and Confused about my son

    My son is not your black and white CF case. He had 5 sweat tests since he was 18 months old. He had two genteic tests. One was only 97 of the genes and then the full panel two and a half years ago. He had number of chest xrays too. Finally in Aug. he had a NPD done and in one nasal passage he...
  3. D

    New and Confused about my son

    My son is not your black and white CF case. He had 5 sweat tests since he was 18 months old. He had two genteic tests. One was only 97 of the genes and then the full panel two and a half years ago. He had number of chest xrays too. Finally in Aug. he had a NPD done and in one nasal passage he...
  4. D

    New and Confused about my son

    I know how you feel. We were in the same boat. My son FINALLY at the age of 8yrs, 8 mths and 5days finally we found out he has CF. He too had border line sweat tests. They were always negative, but a high negative. We did find out two years ago he was a carrier. The past few months he has had...
  5. D

    New and Confused about my son

    I know how you feel. We were in the same boat. My son FINALLY at the age of 8yrs, 8 mths and 5days finally we found out he has CF. He too had border line sweat tests. They were always negative, but a high negative. We did find out two years ago he was a carrier. The past few months he has had...
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    Looking for a great Peds CF Dr in DC area

    I was thinking Johns Hopkins, but was not to sure. Is there any special dr I should ask for. We are going to his PCM tomorrow and I am going to ask for a referral to get a second opinion. Thank you
  7. D

    Looking for a great Peds CF Dr in DC area

    I was thinking Johns Hopkins, but was not to sure. Is there any special dr I should ask for. We are going to his PCM tomorrow and I am going to ask for a referral to get a second opinion. Thank you
  8. D

    Looking for a great Peds CF Dr in DC area

    I was thinking Johns Hopkins, but was not to sure. Is there any special dr I should ask for. We are going to his PCM tomorrow and I am going to ask for a referral to get a second opinion. <br /> <br />Thank you
  9. D

    Looking for a great Peds CF Dr in DC area

    Hello My son is 7 years old and we found out that he is a carrier, but it took military doctors over 6 years to find that out. I am looking to go and get a second opinion. We live at Fort Meade, MD any suggestions? Thank you
  10. D

    Looking for a great Peds CF Dr in DC area

    Hello My son is 7 years old and we found out that he is a carrier, but it took military doctors over 6 years to find that out. I am looking to go and get a second opinion. We live at Fort Meade, MD any suggestions? Thank you
  11. D

    Looking for a great Peds CF Dr in DC area

    Hello My son is 7 years old and we found out that he is a carrier, but it took military doctors over 6 years to find that out. I am looking to go and get a second opinion. We live at Fort Meade, MD any suggestions? <br /> <br />Thank you
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