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Hi all. I just wanted to update everyone that may have been involved with my original post. Anyway, we welcomed Natalie Grace into the world on 1/25/2013. She pooped within the first couple hours and hasn't stopped since. Her weight gain has been excellent and so far is a peaceful happy...
If you guys truly love each other, I don't see why it needs to be a "legalized" wedding. Why not have a wedding and go through with all of the normal wedding steps, just without the paper trail. If and when things get better, you can make it official. Other than a marriage license, I don't...
Thanks for the reply. We do have an OB appointment tomorrow and are getting another ultrasound as well. I'm going to talk with them about it as well. It sounds like the stuff is just very rich in minerals and is good for all around health. It doesn't seem to have any real link to CF so I'm...
My wife is pregnant with a CF baby due in January. My aunt owns a health products company in Colorado and she's been doing some research and talking with doctors and she highly suggests that we start some treatments with a product called Quinton which i believe is also called marine plasma...
Hi everyone. Thanks again for all of the insight and helpful comments. We have been getting much more comfortable with the situation and are learning so much. I believe as long as we raise her to be strong in both body and mind, she will be fine. Her big sister will be a great help and is...
Thanks. I just printed all three of those forum links out so we can start reading up on it all. We are from Pittsburgh PA and I think our childrens hospital is a pretty good one and I know that's where we would go for the CF specialists. Our insurance is excellent right now until July (baby...
Thank you all again! We really are glad we came here for advice and found people that have a lot of knowledge about our situation. ABOVEALLISLOVE - We would really appreciate a "what to expect walk through". Or if anyone else can send any info on that it would definitely be appreciated...
Thank you all. We decided there's no way we could give this baby up and wonder "what if" the rest of our lives. We have both come to terms with it and know there's nothing we can do but to adapt and give this baby all the love we can. We know our daughter will be a great big sister and we...
Thanks for the replies and information. Aboveallislove - If it isn't too much trouble, we would really appreciate a brief walk through of the first year or two. We do read a lot about children after 5 years, but we're not totally sure what to expect in the infant stages and what...
We only need helpful comments here. Please keep anything negative to yourself.
We just found out we are both carriers of D508 gene and our 20 Week fetus has CF. We found out because echogenic bowel was discovered on our 18 week sonogram. From what I read (correct me if I'm wrong), this is...
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