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I would love to be involved also - I am a 36 year old female - I live in Iowa! I think you project is a wonderful idea. Your pictures are amazing also! :)
I started on Actigall when I was in 5th or 6th grade. My spleen was also enlarged, but remained largely unaffected symptom-wise until I was about 25 when I would always get ascites and multiple other issues which landed me in the hospital quite a lot. Also, when I got in college had regular...
I am 35 and I have a barrel chest also - I find it a problem when trying to buy dresses - I was recently a bridesmaid and had to buy a size 16 dress, when my normal size, like for jeans, is 6! Sometimes bras are hard to find too to be big enough around but not too huge in the cup! I don't know...
My CFRD is controlled with insulin and always has been since I was diagnosed at age 16. I switched to the pump in 2008 and makes it so much more convenient - I would never go back to injections. I do monitor my blood sugars 3-4 times per day. A1C is 6.1 as of last week!
Hi. I live in Cotage Grove which is about 5 miles from Hastings. I have wonderful CF docs. It might be easier to talk over the phone instead of such a detailed message. We are moving to Iowa soon but I could provide you some valuable information about cf resources and information about...
I have lived in Iowa the first 22 years of my life and Minnesota the past 13. I have hardly any problems in the summer and actually prefer the humidity - if I am outside in the hot and/or humid, then go inside to air conditioning, I start coughing. Also, I have MANY more lung problems when the...
This may seem kind of odd, but I was wondering if anyone has dark spots on their legs. The skin around my ankles started turning a very dark gray, almost black color about 10 years ago (I am 34 now). Since then, it has progressed and know pretty much from the knees down, the skin appears...
No, I still have my lungs!I guess my CF affected my liver more than my lungs. When I was little (birth to 12 or 13 or so) I got pneumonia a lot. Then they were ok until the liver transplant. I wouldn't say they are worse <em>because</em> of the transplant, it's just that I get a lot more...
No, I still have my lungs!I guess my CF affected my liver more than my lungs. When I was little (birth to 12 or 13 or so) I got pneumonia a lot. Then they were ok until the liver transplant. I wouldn't say they are worse <em>because</em> of the transplant, it's just that I get a lot more...
by the way ---- post transplant life did not stop me from getting married, earning my Masters in Healthcare Administration degree and I am still able to work full time and travel and have a dog and family I love!!! As I metnioned it was rough for a year or 2 right afterwards, but us CFers are...
by the way ---- post transplant life did not stop me from getting married, earning my Masters in Healthcare Administration degree and I am still able to work full time and travel and have a dog and family I love!!! As I metnioned it was rough for a year or 2 right afterwards, but us CFers are...
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