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Recent content by ejaffe

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    What should I do?

    Hello, We are from Louisiana also, depending on your area we can recommend some good doctors for you. Our son is 1 year old now, in fact TODAY IS HIS BIRTHDAY! Our son has really really salty skin. You can just kiss his head and lick your lips and its really strong. I
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    Yogurt?

    Just looked this up on the possible side affects of Periactin. Respiratory: Dryness of nose and throat, thickening of bronchial secretions, tightness of chest and wheezing, nasal stuffiness.
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    G-Tube, need some help.

    We had the same problem with our son, so we just started giving it to him with a spoon of applesauce. He was about 5 months when we started this. Havent had any problems up until lately he just seems to have lost the taste for it and doens't want it at all.
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    Living or Dying with Cystic Fibrosis, The Parents Fight for Life, The State Enforces Death.

    RE:Living or Dying with Cystic Fibrosis, The Parents Fight for Life, The State Enforces Death. Thanks once again for everyones support. I thought I would answer everyones questions. We are in the process of reporting the doctor to the medical examiners board. And yes we have talked to the...
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    Living or Dying with Cystic Fibrosis, The Parents Fight for Life, The State Enforces Death.

    RE:Living or Dying with Cystic Fibrosis, The Parents Fight for Life, The State Enforces Death. Well here is a pic of our son, yes this is the same child they claim "failure to thrive". Thanks for your support everyone.
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    Living or Dying with Cystic Fibrosis, The Parents Fight for Life, The State Enforces Death.

    RE:Living or Dying with Cystic Fibrosis, The Parents Fight for Life, The State Enforces Death. Hes home and feeling slightly better now. Unfortunately CPS wasn't happy with the judges decision to return our son to us so they are bringing us back to court later this month. Thank you so much...
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    Living or Dying with Cystic Fibrosis, The Parents Fight for Life, The State Enforces Death.

    Living or Dying with Cystic Fibrosis, The Parents Fight for Life, The State Enforces Death. Our baby boy was born January 2005 and for just a few short moments everything was perfect. The first tragedy stuck after only a few happy hours. It was discovered our son had a bowel obstruction and...
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    Pregestimil question

    Our son is 9 months old, he has been on pregestimil + enzymes since he was diagnosed. When he frist came home we gave him his enzymes though his g-tube but now he gets them with a spoon of applesauce.
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