Recent content by elaneyday

Angela, Thanks for taking the time to share your story. Sounds like you have been through a great deal of ups and downs and I can tell by the postings, that the group here is very proctective and compassionate on Jared's behalf. I'm praying for the same miracle and so pleased to hear Jared...

Hi, I hope you will do another posting with your story as to why Jared doesn't need the vest now. Was he misdiagnosed? I think we'll all be curious. I think it's great you want to help another family that may not have access to the vest but I hope you don't have a knucklehead doctor giving...

YES, YES, YES! You cannot "catch up" by starting them after symptoms appear. I know a lot of people may have been lucky to have went many years without doing the nebs but how many of them have pretty clear lungs today? I know there are some but I would bet the majority of people wish they had...

LittleLab4CF, I loved what you wrote! Very inspiring. I wish I would have read something like this after I had my baby. We often hear the worst parts of CF but we need to be reminded of all the wonderful blessings too. Thanks again.

My son was diagnosed shortly after birth and also had bowel obstruction surgery on day 2 of life and sinus surgery when he was 7. My heart breaks to know what you and your daughter will be going through, if the diagnosis is positive. My son also has two copies of the Delta F508 mutations...