Recent content by ellyc23

hey everyone! If you have a facebook then find the page bow tie cause and go vote for the bow tie with the roses on it for cf! If it wins ken rosenthaul will wear it and promote cf to during the world series !!!! This is our chance to raise awareness and make cf known to all those that don't...

Very Funny anien2! had me going! Well my son does receive benefits through SSI, but its not as much what you might think. He is on medicaid and everything is fully covered. Based on both our incomes, we would 'MAKE TOO MUCH" but we are living paycheck to paycheck, with a new house and paying...

Well, my son was just approved for SSI. I am not sure if states are different, but here in Texas they consider CF as a disability. He was also put on a type of Medicaid that is better than traditional because no matter how many hospital visits, or hospital stays we have it will always be...

Praying for her!!!! She will come through!

No, here in Texas if you aren't married they only count the mother's income, so if we were to get married then they would count us together.

and what exactly is that?

I could never see myself WITHOUT HIM**** MY mistake.

:rolleyes: Every day I look at the CF Foundation website to read about special news and updates to hopes to find that there is a cure for CF. I've only been dealing with this for a year now, but just seeing how much our son has to go through just so can keep on living is sometimes really hard. I...

Houston has wonderful clinics!! My son is a year and we have a CF care team that we absolutely love!! We are at the Clinical Care Center at Texas Children's Hospital and they are amazing! My son has only been hospitalized once, which was for precaution by them just to give him a little boost...

Does anyone know what is best to do? My fiance and I are still engaged and our son has CF. He is on medicaid and so far everything has been covered and I couldn't imagine how we could afford all of the things he needs if we were to get married, since I have heard stories that he would lose his...

Does anyone know what is best to do? My fiance and I are still engaged and our son has CF. He is on medicaid and so far everything has been covered and I couldn't imagine how we could afford all of the things he needs if we were to get married, since I have heard stories that he would lose his...